Keeping The Story Together - Holistic Content Approach of Data Analysis
Keeping The Story Together - Holistic Content Approach of Data Analysis
18(8) 692–704
Keeping the story together: ! The Author(s) 2013
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Abstract
Delay seeking medical assistance for ischemic stroke symptoms is common worldwide, yet
existing literature does not provide an adequate understanding of experiences at stroke onset.
An explanatory narrative inquiry using a holistic-content approach to data was conducted to gain
understanding of women’s experiences between symptom onset and hospital arrival. A holistic-
content analysis retains the temporal dimension of each individual’s story so that the parts within
the story are interpreted in relation to other parts of the story and the outcome of the story. The
aim of this paper is to present the procedures for holistic-content analysis, address the
trustworthiness of this form of narrative analysis and appraise the utility and limitations of the
approach. It was concluded that holistic-content analysis is congruent with the philosophical
underpinnings of narrative methodology and it is well suited to examine phenomenon that
have a strong temporal dimension. The use of this approach alone to narrative data does not
enable researchers to draw naturalistic generalisations and a structured comparison of the
narrative accounts resulting from a holistic-content analysis is needed to identify similar and
dissimilar characteristics of participants’ experiences.
Keywords
methods, methodological inquiry, qualitative, stroke, women’s health
Delay seeking medical assistance for ischemic stroke symptoms is an important reason for
patient ineligibility for thrombolytic therapy worldwide (Chang et al., 2004; Deng et al.,
2006; Memis et al., 2008). Most literature on this topic consists of demographic and clinical
correlates of arrival time at the hospital, and there is little explication of the experiential
aspects of stroke onset in the qualitative literature. A fuller understanding of ischemic stroke
onset is needed prior to developing evidence-based interventions to promote earlier help
Corresponding author:
Claudia C. Beal, Louise Herrington School of Nursing, Baylor University, 3700 Worth St., Dallas, TX 75246, USA.
Email: [email protected]
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seeking for stroke symptoms. This may be particularly important for women who, compared
with men, have greater awareness of the warning signs of stroke (Centers for Disease Control
and Prevention, 2008) but longer delay reaching the hospital after stroke onset (Smith et al.,
2010). Accordingly, the aim of a recent qualitative study on ischemic stroke onset was to
gain understanding of women’s experiences during the period of time between the onset of
symptoms and arrival at the emergency department.
Of particular interest to this investigation was what might account for variations in the
time that women arrived at the hospital after first noticing the symptoms of ischemic stroke.
The temporal dimension of this topic leant itself to narrative inquiry, a diverse qualitative
research methodology in which stories of life events are collected in order to produce a
reconstruction of a person’s experience (Clandinin and Connelly, 2000). Stories are
composed of a unique sequence of events, mental states and happenings that illuminate
the meaning of life events for the narrator (Bruner, 1990). The terms ‘story’ and
‘narrative’ are synonymous (www.merriamwebster.com) and are used interchangeably
throughout this paper.
According to Holloway and Freshwater (2007), the method chosen to analyse narrative
data turns on the issue that formed the basis for the study and the particular aspect of the
issue that a researcher is drawn to investigate. In this study, a holistic approach was used
in which the data from each participant were kept intact rather than identifying
commonalities or themes across the raw data from participants. An advantage of
preserving the diachronic nature of the events occurring in the period of time between
symptom onset and hospital arrival is that the connections between the parts of the story
and the relationship of the parts to the outcome are made explicit (Polkinghorne, 1995).
However, few detailed procedures were found in the methodological literature for a
holistic analysis of narrative data.
The aim of this paper is to describe the procedures used to conduct a holistic analysis of
women’s stories about the onset of ischemic stroke. I begin the paper by providing a brief
overview of the narrative methodology chosen to guide this study. This is followed by a
framework developed by Lieblich et al. (1998) that conceptualises narrative analysis as
occurring along several dimensions, including the holistic dimension. The procedures used
in the holistic analysis of narrative data for the study are then described and issues of
trustworthiness in narrative research are addressed. I conclude with remarks about the
utility and limitations of a holistic approach to narrative analysis.
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narrative research. For example, Robichaux and Clark (2006) combined a structural analysis
of critical care nurses’ stories of end of life issues (categorical-form) with the identification of
story types (holistic-form). Ayres (2000) identified four distinct story types (holistic-form) in
the narratives of caregivers in addition to extrapolating themes from the data (categorical-
content). Other researchers combined holistic-content and holistic-categorical methods to
showcase the interaction between the insights drawn from the holistic analysis and the
themes in the categorical analysis (Dole, 2001; Mcilfatrick et al., 2006).
Methods
The methods for the study are described in detail elsewhere (Beal, Stuifbergen and Volker,
2012). After Institutional Review Board approval was obtained, 10 community dwelling
women with a verified ischemic stroke diagnosis within one year were recruited through
fliers distributed by the staff at outpatient rehabilitation facilities and through newspaper
advertisement. There are no well-defined criteria for determining sample size in narrative
inquiry and sample sizes generally are small (Creswell et al., 2007). The sample size for this
study was set based on other studies using a holistic-content approach to narrative analysis.
One of the 10 women who agreed to participate developed medical problems and withdrew
from the study before data collection. The age range of the remaining nine women was 24–84
years. Four women were Caucasian, three were Hispanic, one was African American and
one described herself as of Native American and Caucasian ancestry.
Data were obtained through individual interviews during which stories of stroke onset
were elicited. The women were invited to tell the story of their stroke from the moment they
first noticed symptoms until they arrived at the emergency department. The interviews were
audio recorded and the recordings were transcribed verbatim. In addition to the audio files
and transcriptions, the data consisted of field notes written immediately after each interview
and an analytic journal kept during data analysis as an aid to critical reflection and decision
making.
Holistic-content analysis
The aim of the holistic-content analysis used in this study was to create a written account of
each woman’s story. A challenge in writing narrative accounts in that people often do not tell
stories in a linear manner (Lincoln and Guba, 1985) and a narrative researcher must ‘re-story’
the story told to them by the participant (Ollerenshaw and Creswell, 2000 as cited in Creswell
et al., 2007). This activity involves temporally ordering the events and actions that occurred in
the period of time under study and then interpreting how these story elements relate to one
another and contribute to the ending of the story (Polkinghorne, 2007: 483).
The five-step process of constructing the narrative accounts was adapted from
Polkinghorne (1995) and was iterative between the transcription, plot outline (described
below) and the developing narrative account. The first step was to identify the plot of
each woman’s story. A plot consists of temporally linked events and actions that an
individual considers significant to their story, and it transforms events and action into a
whole ‘by highlighting and recognising the contribution that certain events make to the
development and outcome of the story’ (Polkinghorne, 1988: 18–19). Each transcript was
coded to designate events and actions using Bal’s (1985: 13) description of event as ‘the
transition from one state to another state’ and the dictionary definition of action as ‘the
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Box 1. Experts from ‘Maria’s’ plotline. Note: E: Event; A: Action; I/P: Interpersonal Interaction.
Numbers after quotes correspond with the interview number and transcript line number.
produce my own interpretation of the story (Sandelowski, 1991: 165). Both the original
stories told by my participants and my re-storied narratives were constructions. My intent
was not to arrive at an objective account of what occurred but to locate each woman’s
experiences in time and place and focus on the meaning and consequences of their actions
(Bruner, 1986).
I entitled the accounts with a pseudonym chosen by the participant. A representational
quote from the interview text that epitomised each woman’s experiences was placed beneath
the pseudonym. ‘I can make it’, the quote I chose for ‘Maria’, reflected her determination to
control what was happening to her at stroke onset as she instructed her husband to drive
60 miles to their hometown hospital instead of seeking care at a nearby medical centre.
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It seemed as though I was barely in the door of the dance studio owned by Maria and her husband,
Craig, when Maria started to tell me the story of her stroke. Despite right sided weakness, Maria often
would rise from her chair during our interview to demonstrate how her body had acted on the day of
her stroke. Her gestures, and the fact she spoke rapidly with emphasis and animation, made it seem as
though this 55 year old Hispanic woman was enacting her story rather than telling it.
Maria and her husband had just set out for a dance competition when Maria’s right arm suddenly
dropped from where it was propped against the car door, causing her elbow to hit the door handle and
jolting her with an intense ‘funny bone’ sensation. At first, Maria wondered if she dozed off and her arm
had slipped, but after the ‘funny bone’ feeling passed she started thinking . . . Maria knew she was at risk
for stroke, and she had cared for both her parents when they had strokes. She wondered if this
symptom indicated a stroke. ‘I always had that in the back of my mind’, she said . . .
Craig asked if she wanted to turn back and be checked out by a doctor, but Maria said no. She was
reassured that her arms were symmetrical when she held them out, and her right arm felt as strong as
her left. She continued to test her arm periodically during the 60 mile drive to the competition.
When the couple arrived at the competition, Maria told Craig that she thought all was well because
she was walking and talking normally, and her arm appeared fine . . . The rest of the morning passed
uneventfully until around noon, when Maria developed a ‘terrible headache that just came on’. She took
two aspirin and closed her eyes and relaxed in her chair.
About a half hour later, Maria stood up to go to the restroom and realized she was unable to stand
up straight. ‘I was to the right . . . When I would try to straighten myself up, my body still kept on going
that way. It just tilted. It did not want to get straight’, she said. Maria described the sensation of leaning
to one side as ‘odd’ and ‘weird . . .’ and she sat back down to think. After a few minutes she reached the
conclusion that she was having a stroke because her mother had had the same symptom with a stroke.
As she had done that morning in the car, Maria decided to assess what was happening with her
body . . . ‘When I was walking I was, you know, kind of limping . . . I felt like I was short on one foot’, she
said, demonstrating to me how she was ‘unbalanced’ when she tried to walk . . . After taking a few
steps, Maria decided it wasn’t safe to walk and she sat back down and asked a student to get her
husband. They quickly decided she had to go the hospital . . . When she got into the car, Maria decided
to take two more aspirin ‘because I knew that I had a stroke’. She believed that aspirin would ‘stop a lot
of the damage’. A few minutes later, a disturbing thought occurred to her about the aspirin she had just
taken. ‘Then I remembered that too much aspirin could cause bleeding because that’s a blood thinner’,
she said. ‘But I thought that’s okay. I took it. I can’t do nothing about it. So . . . I just calmed myself . . . I
just kept myself calm because I thought if it’s my blood pressure, I don’t need my blood pressure going
up. You see, because blood pressure causes strokes, too’, she said.
. . . As they were pulling out of the parking lot Craig asked Maria to which of the two nearby
hospitals he should drive. Maria replied that she wanted the security and familiarity of her
hometown hospital . . . Her husband’s welfare figured into Maria’s choice to bypass local hospitals. ‘I
knew they were going to leave me at the hospital . . . and I was going to be there for weeks . . . If I had to
go in the hospital, it is nonsense him driving 60 miles every day or staying with me every day over
there . . .’
Craig immediately expressed concern about the wisdom of this plan . . . Maria argued that it was safe
to take the time to drive an hour to the hospital because she was still talking and thinking clearly. She
reasoned that if her thought processes were not affected then she was not in immediate danger . . . The
idea that stroke could be associated with not thinking clearly, and that this would be a sign that
immediate medical attention was necessary, came from Maria’s experience with her mother and her
sister. ‘When my mother had her stroke, and my sister, they couldn’t think clearly. You could see in
their eyes’. Reflecting on the difference between her symptoms and those of her mother and sister,
Maria concluded, ‘What else could happen? That’s how I looked at it . . .’.
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into a coherent whole was central to an understanding of the phenomenon under study (Pak,
2006). Without this prior organisation, the links between various events and the overall
development of the events in the period of time under study would not be as apparent
(D. Polkinghorne, 28 January 2010, personal communication).
The procedure to compare the narrative accounts was based on qualitative content
analysis (Morse and Field, 1995). First, the narrative accounts were read and re-read in
order to obtain an overall impression of the women’s experiences during stroke onset.
Because of the complexity of the accounts, which in some cases described events
occurring over several days, a structure to organise the comparison was needed. Dodd
et al. (2001) conceptualised symptom experience as consisting of an individual’s
perception of a symptom, evaluation of the cause of the symptom and responses to the
symptom, and different coloured highlighters were used to identify text corresponding to
each of the three components of symptom experience. A fourth colour was used to identify
the actions and contributions of other people in the women’s stories because the role of other
people spanned all three components of symptom experience.
The next step in the comparative process consisted of identifying categories within each of
the (now) four components of symptoms experience. This involved further reading of the
narrative accounts, making notes in the margins to capture initial impressions. From these
notes, key concepts were identified. As the process continued, key concepts were organised
under larger labels. Eventually, between three and five labels were identified for each of the
four components of symptom experience, which became the categories that captured the
essential attributes of participants’ experiences at stroke onset.
After the categories were established, the relationship between the categories was analysed
across the four components of symptom experience. This was an important part of the
process because experiences in one component of symptom experience often were related
to experiences in another component. For example, a participant’s first interpretations of a
symptom as an everyday bodily sensation served as the basis for her actions in response to
symptoms, but as time went on and symptoms persisted or worsened or new symptoms
appeared, these bodily changes were re-interpreted and new actions taken based on the
revised interpretations. This step also entailed identifying differences in the accounts and
the contextual factors that may have accounted for the differences.
The comparison of the narrative accounts culminated in a written analysis and synthesis
of the findings. This document was organised under the headings of the four components of
symptom experience that had served as the organising framework for the comparison of the
accounts. The categories were thoroughly discussed, similarities and differences in the
narrative accounts as they related to the categories were described and the contextual
factors that contributed to these similarities and differences were explicated. Previous
research was brought forth in order to illustrate how the findings either were supported
by or diverged from this literature.
Trustworthiness of findings
When discussing the concept of validity in narrative research, Mischler (1990: 420)
distinguished the concept of ‘truth’, which assumes an objective reality, and
‘trustworthiness’ in which scientific knowledge is constructed through praxis whereby
readers decide whether they would use the findings as the basis for their own work.
Grounded in the work of Lincoln and Guba (1985), Graneheim and Lundman (2004)
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(Porter, 2007). In addition, deciding whether the findings accurately describe the experience
under study, nurses also must assess the applicability to their patients. One way to provide
evidence for transferability is to include ‘rich details and revealing descriptions’ in the findings
(Polkinghorne, 2007). Included in the research report were descriptions of the activities that
the women were engaged in at the time of the stroke as well as personal and family experiences
with illness. These elements, along with a description of the sample and the setting, placed the
events leading to hospital admission in context, contributing to the reader’s ability to assess
the utility of the study for practice (Graneheim and Lundman, 2004).
Discussion
A holistic-content approach to data analysis is congruent with the theoretical and
philosophical underpinnings of narrative inquiry. Bruner (1986) conceptualised narrative
thinking as a specific form of cognition in which people are naturally disposed to search
for the connections between events and actions. A holistic-content analysis, with its central
activity of configuring events and actions into a meaningful whole, is consistent with the
nature of the cognitive processes that people use to make meaning of life experiences as they
construct stories about their experiences. It is also consistent with an underlying assumption
of narrative inquiry that human experience occurs within a personal, social and cultural
sphere of understanding (Polkinghorne, 1988). The findings from this investigation revealed
that individual variations in participants’ life experiences were salient for the disparity in the
length of time (1 h to 6 days) that elapsed between first notice of symptoms and arrival at the
emergency department.
Temporality is at the heart of narrative inquiry. Ricoeur (1979) saw narrative as the ‘mode
of discourse through which the mode of being which we call temporality . . . is brought into
language’ (p. 17). Because time shapes events, narrators must ‘reckon with time’ when telling
a story and it is through narration that events in human lives become meaningful (Ricoeur,
1979). As do the participants in a narrative inquiry, narrative researchers reckon with time in
the process of chronologically ordering events and actions in the course of fashioning the
stories into narrative accounts.
Narratives do more than place actions and events in time. Telling a story involves
Heidegger’s (1962) level of temporality called ‘historicality’ in which time is experienced as
a ‘back and forth’ between the past, the ‘everyday-present-at-hand’ and what is yet to be
(Ricoeur, 1979). Every women in this study linked what happened to her at stroke onset with
past events, such as a previous personal illness or that of a family member, and when ‘re-
storying’ their stories I was able display how past events related to symptom response.
Holistic analysis may be intrinsically familiar and of value to nurses because it has
similarities with the ways nurses communicate with one another about clients in the
course of professional interactions (Simons and Squire, 2008). In addition, nurses know
that questions to patients and research participants frequently elicit stories. Based on
these stories, nurses reconstruct health histories and gain understanding of the meaning of
illness for patients by employing, albeit unconsciously, narrative modes of thought. A
holistic-content analysis is consistent with the relational aspect of storytelling wherein a
story is told with a listener rather than to a listener, thereby creating or shaping a
relationship with another individual (Frank, 2000: 354). Holistic-content analysis is an
extension of the nurse–patient relationship as the researcher extends the activity of
listening to a story into the analytic process (Chase, 2008: 73).
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Despite the utility of holistic-content analysis, this approach has limitations when used as
the sole method of analysis. Although it allows researchers to capture the intricacies of
individual experience, a holistic approach precludes elucidation of commonalities in the
data from multiple research participants (Ayres et al., 2003). Following the holistic
analysis with a comparison of the narrative accounts preserves the temporal dimension of
participant’s stories and the particulars of individual experience yet also enables researchers
to draw naturalistic generalisations (Sandelowski, 1996). The two-step approach to narrative
data described in this paper illuminated how the same general factors (e.g. the onset of
neurological symptoms) within the context of varying factors (e.g. differences in
socioeconomic status and life situation; prior experiences with illness; familiarity
with everyday bodily occurrences; the role of other people in health-decision making)
led to variations in the same general outcome (e.g. the timing of hospital arrival)
(Sandelowski, 1996).
Conclusion
The strength of a holistic-content approach to narrative data is that it takes into
consideration individual variations in an experience common to the participants. A
limitation of holistic-content analysis is that it does not result in a general understanding
of the topic under study. A structured comparison of the narrative accounts that result from
a holistic-content analysis is needed to identify similar and dissimilar characteristics of
participants’ experiences. This two-step approach to narrative data would be particularly
useful when a temporal ordering of events is relevant to understanding a problem or issue. In
addition to the exploration of acute and chronic illness trajectories, topics that may be well
suited to a holistic-content approach include health care decision making and nursing
professional development.
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Funding
This research received no specific grant from any funding agency in the public, commercial, or not-for-
profit sectors.
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Claudia C. Beal (PhD, RN) is an assistant professor at Baylor University, Louise Herrington
School of Nursing in Dallas, Texas, USA where she teaches applied clinical ethics, research
methods and translation of evidence courses in the graduate program. Her professional
interests are broadly in the area of women’s health with a focus on chronic and disabling
conditions. Claudia has a particular interest in stroke and in several studies has examined the
symptom management of acute ischemic stroke. In her current study Claudia is examining
stroke health literacy among African American women. Claudia received a PhD from the
University of Texas at Austin where she completed a portfolio in women and gender studies
with a specialisation in women and health through the Center for Women and Gender
Studies. Claudia’s work has been published in leading nursing journals and she serves as a
manuscript reviewer for several professional journals.
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