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A Conceptual Review of Loneliness

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0% found this document useful (0 votes)
66 views19 pages

A Conceptual Review of Loneliness

psicologia

Uploaded by

Juan Olano
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as PDF, TXT or read online on Scribd
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International Journal of

Environmental Research
and Public Health

Review
A Conceptual Review of Loneliness in Adults: Qualitative
Evidence Synthesis
Louise Mansfield 1, *, Christina Victor 1 , Catherine Meads 2 , Norma Daykin 3 , Alan Tomlinson 4 , Jack Lane 4 ,
Karen Gray 1 and Alex Golding 1

1 Centre for Health and Wellbeing across the Lifecourse, College of Health, Medicine & Life Sciences,
Brunel University London, Uxbridge UB8 3PH, UK; [email protected] (C.V.);
[email protected] (K.G.); [email protected] (A.G.)
2 Faculty of Health, Education, Medicine and Social Care, Anglia Ruskin University, Cambridge CB1 1PT, UK;
[email protected]
3 New Social Research, Faculty of IT and Communication Sciences, Tampere University,
33100 Tampere, Finland; [email protected]
4 Centre for Arts and Wellbeing, School of Humanities, University of Brighton, Brighton BN2 4AT, UK;
[email protected] (A.T.); [email protected] (J.L.)
* Correspondence: [email protected]; Tel.: +44-(0)-1895-267561

Abstract: The paper reports an evidence synthesis of how loneliness is conceptualised in qualitative
studies in adults. Using PRISMA guidelines, our review evaluated exposure to or experiences of
 loneliness by adults (aged 16+) in any setting as outcomes, processes, or both. Our initial review
 included any qualitative or mixed-methods study, published or unpublished, in English, from 1945
Citation: Mansfield, L.; Victor, C.; to 2018, if it employed an identified theory or concept for understanding loneliness. The review was
Meads, C.; Daykin, N.; Tomlinson, A.; updated to include publications up to November 2020. We used a PEEST (Participants, Exposure,
Lane, J.; Gray, K.; Golding, A. Evaluation, Study Design, Theory) inclusion criteria. Data extraction and quality assessment (CASP)
A Conceptual Review of Loneliness were completed and cross-checked by a second reviewer. The Evidence of Reviews of Qualitative
in Adults: Qualitative Evidence Research (CERQual) was used to evaluate confidence in the findings. We undertook a thematic
Synthesis. Int. J. Environ. Res. Public synthesis using inductive methods for peer-reviewed papers. The evidence identified three types
Health 2021, 18, 11522. https://
of distinct but overlapping conceptualisations of loneliness: social, emotional, and existential. We
doi.org/10.3390/ijerph182111522
have high confidence in the evidence conceptualising social loneliness and moderate confidence
in the evidence on emotional and existential loneliness. Our findings provide a more nuanced
Academic Editors: Marlies Maes,
understanding of these diverse conceptualisations to inform more effective decision-making and
Pamela Qualter, Marcus Mund and
Luzia Heu
intervention development to address the negative wellbeing impacts of loneliness.

Received: 23 August 2021 Keywords: loneliness; conceptual review; social loneliness; emotional loneliness; existential loneliness
Accepted: 29 October 2021
Published: 2 November 2021

Publisher’s Note: MDPI stays neutral 1. Introduction


with regard to jurisdictional claims in Most of us will encounter loneliness at some point in our lives. Indeed, some philoso-
published maps and institutional affil- phers argue that loneliness is a universal human experience [1,2]. This experience may
iations. be momentary or protracted, occur frequently or rarely, and vary in intensity. Loneliness
is characterised as a homogeneous, static, and/or linear experience that is quantitatively
accessible (i.e., we can measure it), and it is understood as a problem about which ‘some-
thing’ can and should be done to prevent or cure it [3]. In public health, for example,
Copyright: © 2021 by the authors. loneliness has been problematised and medicalised because of the associations with a
Licensee MDPI, Basel, Switzerland. range of negative mental and physical health outcomes [4], including increased mortality,
This article is an open access article morbidity, poorer health behaviours and excess service use [5], cardiovascular disease [6,7],
distributed under the terms and reduced physical activity [8,9], poorer cognitive function [10,11] and depression [12,13].
conditions of the Creative Commons Distinct but related concepts, most notably loneliness and social isolation, but also living
Attribution (CC BY) license (https://
alone, aloneness, and solitude are often conflated despite not being linguistically, empiri-
creativecommons.org/licenses/by/
cally, or conceptually interchangeable. Despite the almost universality of the experience
4.0/).

Int. J. Environ. Res. Public Health 2021, 18, 11522. https://doi.org/10.3390/ijerph182111522 https://www.mdpi.com/journal/ijerph
Int. J. Environ. Res. Public Health 2021, 18, 11522 2 of 19

of loneliness, and an extensive research literature, it remains an enigmatic concept for


individuals, researchers, policymakers, and practitioners since it is the outcome of an
individual’s subjective experience.
Understanding loneliness is made more challenging because it is characterised by dif-
fering antecedents across varying populations and across individual life courses [14]. There
is a lack of clarity about theories of loneliness and their application in empirical studies,
and how they should be evaluated, measured, and applied in policy and practice [4,15–17].
When interpreting and using evidence about loneliness, these conceptual challenges are
important to identify and address because they will have a profound influence on the gen-
eration, interpretation, and potential impact of evidence on policy, practice, and research
in the field. In addition, there is a growing body of qualitative research that has not been
fully explored for its contribution to bringing conceptual clarity to loneliness research. We
undertook a synthesis of qualitative studies to start to address this evidence gap in 2018
with the aim of identifying, synthesising, and reporting on how the included studies have
conceptualised loneliness as a way of enriching thinking and informing decision-making
and practice in the field. We were not developing a new concept of loneliness. Following
guidelines that reviews should be updated two years after publication, we updated the
previous review to include relevant papers published up to 2020. This paper combines
both reviews and summarises all the relevant literature on conceptualisations of social,
emotional, and existential loneliness in diverse populations, their positive and negative
attributes, and the ways people have found to alleviate loneliness as reported in academic
journal articles and grey literature.

2. Materials and Methods


2.1. Methods
The protocol was registered with the PROSPERO database (registration number:
CRD42019124565). We followed PRISMA guidelines for conducting and reporting in
this updated evidence review [18]. We employed a two-stage method, based on that
proposed by key authors in the field [19]. Stage 1 identified evidence on conceptualisations,
models, frameworks, and theories of loneliness and related concepts or domains. We made
provision for a Stage 2 process to include additional evidence reviews for specific concepts
and theories identified in Stage 1. This was not deemed necessary given the extensive
evidence found at Stage 1. Our review was produced with stakeholder engagement on
a project advisory board constituting personnel from key UK government departments,
colleagues at the What Works Centre for Wellbeing, local and regional public health experts,
and community groups. Stakeholder engagement consisted of an inception meeting to
agree the protocol for the review and ongoing update meetings to discuss preliminary
findings, implications of the evidence, and translation and dissemination activities.

2.2. Inclusion Criteria


We used a bespoke framework, PEEST (Participants, Exposure, Evaluation, Study
Design, Theory), to identify relevant literature. The inclusion criteria were agreed through
peer review with our stakeholder group to reflect the focus of their work on loneliness
on adults aged 16 or over and from high- or middle-income countries, using the United
Nations (UN) criteria, and including both clinical and community populations. The
included studies evaluated participants’ exposure to or experiences of loneliness, however
conceptualised, in any setting, reported as outcomes, processes, or both. Any qualitative or
mixed-methods study with qualitative component in English, published between 1945 and
November 2018 (for the previous review) and December 2018 and December 2020 (for the
new review) was eligible if employing an identified theory, model, concept, or framework
for understanding loneliness beyond a simple definition. Studies were considered off-
PEEST if they included only a simple definition of loneliness with no conceptual analysis
or were background literature reviews.
Int. J. Environ. Res. Public Health 2021, 18, 11522 3 of 19

2.3. Data Sources and Search Strategy


The search strategy was informed by engaging in the peer review process with our
stakeholder group, bringing expertise in policymaking, practice, and academic work on
loneliness, the librarians at Brunel University London and the University of Brighton, and
through advice from a systematic review expert, in accordance with PRISMA guidelines [18]
for reviews in public health. Full details of our search strategy are in Supplementary S1.
Eight electronic databases (Scopus, Medline (via Ovid), Eric, PsycINFO (via EBSCO),
CINAHL Plus, and the Science, Social Science, Arts, and Humanities Citation Indices (via
Web of Science) were searched using a combination of MeSH terms and text words. All
database searches were framed by this strategy, but individual searches were appropriately
revised to suit the precise requirements for each database. We hand-searched reference lists
of reviews and systematic reviews published between 1945 and 2020, following PRISMA
guidelines [18]. Grey literature was sought via an online call for evidence, employment of
expert input, review of key-sector websites, and a Google search (a keyword search and
review of titles of the first 100 hits) for the previous and new reviews.

2.4. Study Selection


Search results (titles and abstracts) were independently checked by two review authors.
Where eligibility was unclear, the full article was checked. Disagreements were resolved
through consensus, or a third team member considered the citation and a majority decision
was made.

2.5. Data Extraction


We extracted data as reported by authors on: (a) the conceptualisation(s) of loneliness,
(b) population defined by age, identity, or context, (c) positive and negative attributes of
loneliness identified, and (d) mechanisms for alleviating loneliness. Data were extracted
onto standardised forms independently by one reviewer and cross-checked by a second.
Discrepancies were resolved by consensus. Our protocol allowed us to contact authors if
the required information could not be extracted and if this was essential for interpretation
of their results, but we did not need to follow this procedure.

2.6. Quality Assessment


The Critical Appraisal Skills Programme (CASP) quality checklist for qualitative
studies was used for published studies [20]. Two authors independently applied the
criteria to each included study, and disagreements were resolved through discussion. For
grey literature, the Public Health England (PHE) Arts for Health and Wellbeing Evaluation
Framework [21] was used to judge the quality in terms of the appropriateness of the
evaluation design, the rigour of the data collection and analysis and the precision of the
reporting. This checklist was employed by agreement with stakeholders in the project on
account of the methods and context for collecting evidence in the grey literature being less
well established than the published literature.
Confidence in the Evidence of Reviews of Qualitative Research (CERQual) was used
to judge confidence in the review findings, specifically the methodological limitations,
relevance, coherence, and adequacy of the data [22]. Confidence was decreased if there
were serious or very serious limitations in the design or conduct of the study, the evidence
was not relevant to the study objectives, the findings/conclusions were not supported by
the evidence, or the data were of inferior quality and inadequate in supporting the findings.
Confidence was increased if the study was well designed with few limitations, the evidence
was applicable to the context specified in the objectives, the findings/conclusions were
supported by evidence and provided convincing explanation for any patterns found, or
the data supporting findings were rich and of high quality.
Int. J. Environ. Res. Public Health 2021, 18, 11522 4 of 19

2.7. Data Synthesis


The synthesis was conducted thematically using the principles of inductive and
reflexive methods (see for example [23]) through the development of a broadly inductive
and iterative framework or typology that identified three types of loneliness: (i) social
loneliness, (ii) emotional loneliness, and (iii) existential loneliness. This framework was
drafted by L.M. and N.D. and refined by the research team. Each paper was categorised as
representing one or more of the types of loneliness, bringing a more nuanced understanding
to the analysis, anchored in a recognition of the complex social, emotional, and contextual
factors which characterise loneliness.

3. Results
3.1. Search Results
The previous review returned 5117 citations after the removal of duplicates and
15 records from additional searches (total 5192) of which 223 full texts were assessed for
eligibility. From the previous review, 127 published studies and 16 grey literature reports
(total 143) were included. The new review returned 3449 citations after the removal of
duplicates, of which 25 full texts were assessed for eligibility. There were 10 published
studies and 2 grey literature reports that were included from the new review (a total of 12).
In total, 137 published studies and 18 grey literature reports are included in this systematic
review, providing 155 sources of evidence conceptualising loneliness: 116 qualitative
studies in journal articles and 7 book chapters (including interviews, observation, document
analysis, diaries, and focus group methods); 14 mixed-methods studies (only the qualitative
findings met inclusion criteria); and 18 grey literature reports. The search-screening process
is illustrated in the PRISMA flowchart (see Figure 1). A table of excluded studies with
reasons for exclusion can be found in Supplementary S2.

3.2. Study Characteristics


A summary of the characteristics of included studies can be found in a list in Sup-
plementary S3 (with full details of study objectives, description, participants, design and
analysis employed, how it conceptualises loneliness, the predominant themes, and study
conclusions). In terms of populations, 68 studies reported that participants were solely
aged 50+ years (43%). However, the included studies also demonstrated considerable
heterogeneity including groups specified by youth and middle age, cultural, ethnic, gender
and sexual orientation, people living with physical and mental illness, those living in care
homes, people in clinical settings, homeless people, healthcare professionals, volunteers,
parents, and prisoners. Studies were reported for 26 different countries with the largest
representation from the UK (n = 37) and the USA (n = 33), and the earliest published
study, by Jerrome, was dated 1983. Loneliness was conceptualised in the included studies
principally by three types: social loneliness (n = 108), emotional loneliness (n = 27), and
existential loneliness (n = 20). Studies emphasised one of these three types of loneliness,
and some considered the interconnections between two or more different types, which we
discuss later in the section on multidimensional concepts of loneliness.

3.3. Study Quality


Following the CASP quality checklist, articles were scored out of 8, where 8 is the
highest. In general, the quality was good for the published journal articles, with a relatively
high number of studies (73/155) receiving scores of 7 and 8, but less so for the book
chapters, most likely due to the different publishing requirements. Study quality varied
across the types of loneliness studies with ratings of 7 or 8 for 48% of the social loneliness
(52/108), 65% of existential loneliness (13/20), and 37% of emotional loneliness (10/27)
studies. Methodological weaknesses included a lack of exact details of the researcher’s
role, potential bias, and influence on the sample recruitment, setting, and responses of
participants. Published studies identified ethical issues but did not always include an
official record. The grey literature was of mixed quality with high-quality reports, including
Int. J. Environ. Res. Public Health 2021, 18, 11522 5 of 19

details of methods, theoretical analysis and recognition of limitations, and low-quality


(credibility) reports providing little detail of the methods, commonly taking participant
accounts at face value without theoretical analysis. A summary of quality checklist results
and scores is presented in Supplementary S4 for published studies. Supplementary S5
presents quality ratings for the grey literature. The CERQual qualitative evidence profile
is shown in Supplementary S6 (providing a succinct summary of the methodological
limitations of all the included studies). This shows that there was much more evidence for
social loneliness than emotional and existential loneliness, and we have high confidence
in the social loneliness results and moderate confidence in the emotional and existential
loneliness results.

Figure 1. PRISMA flowchart.

3.4. Social Loneliness


Studies of social loneliness dominate the evidence accounting for 70% (108/155) of

sources in the review and included populations of different ages, family carers, and a
range of different employment groups [24–131]. The typical conceptualisation of social
loneliness was as an ‘objective’ condition framed by numbers of social connections and

Int. J. Environ. Res. Public Health 2021, 18, 11522 6 of 19

explained as a subjective evaluation of feeling isolated, deprived of companionship, lacking


a sense of belonging, and lacking access to a satisfying social network; that is, it describes a
sense of disconnection from others. How this concept was manifest and the underpinning
contributary mechanisms varied across populations and contexts.
In studies focused on older 50+ years and younger populations, social loneliness was
articulated as a feeling of disconnection across various domains of life including devalu-
ation, helplessness, powerlessness, and feelings of stigma and shame. The vulnerability
created by social loneliness was highlighted by accounts of financial fraud in elderly peo-
ple [38]. For older adults, loss, detachment, and boredom were commonly identified as
contributors to loneliness in both community and care home settings. Young people noted
loneliness to be connected to the need to escape from someone or something and aligned
loneliness with submission or resignation to negative feelings, often alongside feelings of
shame and stigma [67]. The stigma of loneliness was reported by a wide range of groups,
including people with HIV and with cancer [24], homeless people [25,32,74,111], female
prisoners [43], men who have sex with other men [53], transgender people [108], and older
people living in care settings [29]. To clarify, within the context of loneliness, stigma is
understood to mean some kind of marginalisation, feelings of disgrace, or exclusion. If the
papers did not directly use the term ‘stigma’ but used one of these concepts, we took it to
mean stigmatisation.
There were groups or contexts where the feeling of disconnection associated with
social loneliness took specific forms. Cultural difference was reported as a potential source
of social loneliness in older population groups [69,82]. For international students, the ab-
sence of intimate personal connections combined with a lack of cultural fit created ‘cultural
loneliness’, a version of social loneliness generated by the absence of their cultural and
linguistic settings [112]. This notion of cultural loneliness could persist even when people
had good access to social networks. Studies of social loneliness in the employment context
identified a lack of support and employment-related ‘distancing’ or isolation from others
from a diverse range of employees including long-haul truck drivers [26], homework-
ers [46], school principals [57,60,113], medical educators [96], professional golfers [40], and
senior corporate managers [104], as well as family caregivers [45,98]. Homeworkers and
family caregivers seem to be especially vulnerable. Both groups experienced a sense of
being cut off from their networks, professional and personal, because of the restrictions
their respective roles had on their personal life [46,98]. For family caregivers, not feeling
understood and being denied recognition for their role was experienced alongside more
generic feelings of powerlessness and helplessness to take control of live events.
Experiences of illness and healthcare led to or compounded social loneliness in ways
not reported for other population groups. In care homes, feeling lonely was exacerbated
by issues preventing carers from providing adequate care (e.g., limited resources, time
pressures, and professional rules) [83]. For stroke patients, a lack of support and contact, a
sense of being unable to contribute, and not having an intimate relationship contributed
to loneliness [109]. The design of healthcare environments can generate social loneliness
as illustrated by a stroke ward, which while allowing privacy and supporting efficient
clinical care, increased loneliness and created barriers to social connection [25]. This
example provides one of the few explanations of loneliness not simply attributable to
individual characteristics. In mental health contexts, social loneliness was affected by
external environments, activities, and therapies/treatment, as well as people [121]. Social
loneliness arose as a result of physical, cognitive, behavioural, and emotional responses
following traumatic brain injury since these changes could affect existing relationships,
leading to the loss of old friends and creating difficulties in making new ones [85].
Solutions to social loneliness were numerous and diverse in this evidence base. For
older adults, services to alleviate social loneliness were largely focussed on increasing
social contacts. These included friendship clubs [44], music provision [127], museum-
based social prescribing [129,131], local history cafes [119], broadly defined community-
based approaches [30,58,89,100,125], and health-messaging services [49,124]. Community-
Int. J. Environ. Res. Public Health 2021, 18, 11522 7 of 19

based approaches to alleviating social loneliness were explored where community leaders
worked with older women [100]. These suggested that increasing independence, improving
communication and developing mentoring, buddying, and intergenerational befriending
programmes could provide relevant support to women of older age [100]. Intergenerational
approaches using reverse mentoring in which younger adults trained older people in the
use of information technology (IT) were reported as successful in alleviating self-reported
social loneliness in older people in one study [33]. Provision of social activities to alleviate
social loneliness in nursing homes could include a range of activities (e.g., self-awareness
programmes, humour sessions, social engagements, and faith-based activities), but these
were only associated with self-reported reductions in social loneliness if the activities were
relevant to older people [72,80].
Young people used a variety of coping strategies for managing social loneliness and
preserving and extending social connections. These included distraction, seeking help
from professionals and institutions, support seeking, self-reliance, and problem-solving
behaviours [67,112,118]. Although social loneliness in young people was difficult to identify,
youth workers could help to prevent a downward spiral by addressing loneliness risk at
key moments, which would differ amongst individuals, but may be related to relationship
concerns, mental health issues, and a range of perceived stressors in life [128].
Studies reported a range of strategies for addressing workplace social loneliness
in different contexts, including provision of opportunities to socialise and maintaining
connections with people who provide social support [26]. The use of mobile technologies,
such as smartphones, widened possibilities for homeworkers to socialise while retaining
access to emails and remaining contactable by clients, although the use of technological
devices did not necessarily address professional isolation in homeworkers [46]. Strategic
responses to alleviating social loneliness at the organisational level were noted in the
context of academic institutions as part of a wider examination of the role of social support
in improving mental wellbeing [6]. In wider work contexts, the extent to which senior
managers felt lonely was also dependent on coping strategies they used, including mental
and physical disconnection, adopting a healthy lifestyle, gaining support from one’s
network, and affecting and influencing others.

3.5. Emotional Loneliness


A total of 27 of the 155 included studies conceptualised emotional loneliness with a
‘loss model’ or ‘primary relationship deficit’ approach, which was used in all but two of the
studies as the explanatory framework [132–158]. A common theme in conceptualisations
of emotional loneliness was the connection with social isolation and a loss or lack of good
quality social relationships in all the included studies in this theme. However, in contrast
to social loneliness, the sense of loss, disconnection, withdrawal, detachment, or alienation
from people and places and feelings of abandonment and exclusion was resultant from a
lack of a sense of belonging or recognition and, for older adults, perceptions of agism and
stereotyping. Negative emotions identified in conceptualisations of emotional loneliness
included sadness, fear, anxiety, and worry. Although it overlaps with social loneliness,
the emotional aspect within this conceptualisation of loneliness requires addressing in a
distinct way because these negative feelings occur even when one is in close contact with
people. Positive emotions connected to emotional loneliness were also conceptualised in
terms of optimistic perceptions of aloneness and solitude associated with learning to cope
with loneliness and adjusting to imposed loneliness. Emotional loneliness was reported
as both acute, temporary, and subject to negotiation and change, but also permanent,
long-lasting, and associated with detrimental mental and physical health.
Emotional loneliness was described by older people as a type of inner pain or suf-
fering, a feeling to be kept hidden and silent because of fears of being stigmatised as
lonely and old, becoming a burden on family and friends, and feeling responsible for
controlling emotional aspects of loneliness [140,141,150,151]. Negative feelings associated
with loss [133–135,137,140,141,150,154,156], disconnection, withdrawal, detachment, or
Int. J. Environ. Res. Public Health 2021, 18, 11522 8 of 19

alienation from people and places [135,150,152,156], a feeling of abandonment [137,143],


exclusion [141], and a sense of losing or being in conflict with ones’ established iden-
tity [135,140,144,145] were descriptions of emotional loneliness in old age. Two studies
focussed on young people, highlighting a dearth of studies in this area [139,149]. Both stud-
ies related to young people growing up in particular family contexts: living with a parent
diagnosed with cancer and having parents who were Holocaust survivors, highlighting
specific exclusionary contexts. For the parental cancer patient context, key exclusionary
processes included failure of professionals to explain the situation to them, being left out
of decisions and conversations connected to diagnoses, and treatment of their parents.
Alongside this, feelings of uncertainty about the future, fear of losing a parent, and a sense
that they were not equipped to cope generated a sense of distance or disconnection from
others. For children of parents who were Holocaust survivors, emotional loneliness was a
cognitive reaction to parental trauma [149] and a consequence of negative self-comparison
to families without such trauma. Alleviating this kind of emotional loneliness was asso-
ciated with support and comfort offered by family members and being given accurate
information by healthcare professionals, which combined to provide a sense of relief from
emotional loneliness for the young people.
Positive feelings associated with emotional loneliness were observed only for older
adults and were associated with the perceived benefits of solitude or aloneness [137,143,147].
Solitude was connected to feelings of freedom and a sense of comfort in old age in one
study and defined as an ‘at homeness’. Being able to cope with emotional loneliness in
old age was associated with a sense of joy and pride in oneself [147] and emotional self-
management [143]. The included studies examined processes of negotiating and adapting
to loneliness in old age. Alleviating emotional loneliness was connected to establishing
new routines to account for the loss of loved ones or social networks [135,152], including
developing opportunities for meaningful social contact [156], engaging in therapy for
those living with long-term mental health conditions [141], and taking part in meaningful
activities, such as reading, gardening, and social meals [143,151].
Of the 27 studies on emotional loneliness, seven studies explored emotional loneliness
as a consequence of relational issues [132,136,138,142,148,153,155,157], further supporting
the idea that social and emotional loneliness are interconnected. Four of these identified
that complex family dynamics including responsibility for childcare, older children leaving
home, and bereavement (for mothers) [132]; poor childhood attachment (to fathers), and
weak sibling relationships [153]; being placed in a care home [148]; and loss of intimate
partner relationships [136,155]. These all resulted in the deeply emotional character of
loneliness connected to low mood, a lack of sense of purpose and feelings of suffering,
family abandonment, and pervasive worry. Such negative consequences of emotional
loneliness could be further entrenched by disadvantaged living conditions, such as low
income and limited access to spaces/places with good amenities [132]. This evidence points
to the significance of high quality and meaningful relationships and an understanding of
the role of place/space in countering social and emotional loneliness. When relationships
(particularly intimate ones) are not high quality, there is a negative impact on emotional
loneliness, shaped through feelings of disappointment, abandonment, and feeling devalued
or powerless [157]. In studies of people living with learning disabilities or mental health
conditions [142,146], the structuring of exclusion was identified as a contributory factor
to emotional loneliness, characterised by a sense of exclusion and lack of acceptance even
in the presence of people. In one of these studies, the potential of reframing loneliness in
terms of the benefits of solitude was considered possible [142].
Approaches to alleviating emotional loneliness for those living with physical and men-
tal health conditions included nostalgic activities, allowing remembering and reminiscing
about happy times, keeping busy, and engaging in activities involving meeting people,
which could lead to feelings of pride in self-management [141,147,151,152]. Participating
in therapy was also considered to help strengthen a sense of connection to the world and
alleviate emotional loneliness for those living with mental health conditions [141]. Alleviat-
Int. J. Environ. Res. Public Health 2021, 18, 11522 9 of 19

ing emotional loneliness associated with insecurity or a lack of attachment to place, either
rural or urban, through place-based strategies was reported in one study [154]. Creating
place-based opportunities for the development of a sense of neighbourhood was similarly
suggested in one study as a potential solution to emotional loneliness [156].

3.6. Existential Loneliness


A total of 20 the 155 included studies conceptualised existential loneliness [159–178].
In contrast to emotional or social loneliness, existential loneliness was defined as a feeling
of fundamental separateness from others and the wider world, not simply as the absence of
meaningful relationships and negative emotional experience. Participants described it as a
feeling that occurred when important others were absent through some form of psycholog-
ical rejection or absence [159,161,162], or when people felt left behind by life events, such
as death or divorce, and/or experiences of physical or mental decline or limitation through
illness, traumatic experience, aging, and a sense of one’s mortality [160,163–174,176–178].
Similar explanations of existential loneliness were reported by healthcare professionals
supporting older people experiencing this type of loneliness [175]. This conceptualisation
of existential loneliness was connected, in all studies examining the concept, to feelings
of separateness from other human beings, feelings of loss and longing, and/or a sense
of being an outsider against a need for connectedness, belonging, and companionship.
Studies indicated that existential loneliness may also be felt while with others, as a sense of
disconnection from a group [159,161,163,167,168,170–172,174]. In such situations, partici-
pants reported that existential loneliness was experienced through being misunderstood,
psychologically and emotionally detached, and more deeply as a perception of being
without others. For AIDS patients in one study, this was shown to lead to stigma for
this population group [159]. Negative feelings of existential loneliness were connected to
healthcare contexts via the concept of the ‘lonely patient’ who, while in close proximity
to other patients or healthcare professionals, may feel disconnected because of a sense of
vulnerability, lack of care [161,163], or issues with communication [169].
Existential loneliness was not always conceived of as a negative experience. Evidence
in one study suggested that existential loneliness could be meaningful if developed as part
of a voluntary transcendental experience [161]. Such self-directed and potentially positive
experiences of existential loneliness were conceptualised as a powerful force for calm and
peace, a type of temporary recharging experience adopted when people felt a need to break
from human connection for a while. While old age, frailty, and impending death were
most often considered in the context of negative feelings of existential loneliness, there
was evidence in two studies that such life experiences contributed to an understanding
of loneliness as a balance between solitude and meaningful human connections that
involved both social and emotional experiences, and the building of new and trusting
relationships [173,177].

3.7. Multidimensional Models of Loneliness


Perhaps representing an advance in understandings of loneliness, six studies in
this review proposed what we would refer to as multidimensional models of loneli-
ness [29,37,63,69,82,94]. Multidimensional models of loneliness in studies of older people
reflected the influence of interactions between relationship quality, becoming and being
old, personal troubles/personality traits, and sickness on feelings of loneliness [29,37,94].
In these models, social loneliness intertwines with emotional loneliness in complex ways
revealing loneliness to be deeply or intensely felt, potentially hidden or masked, and
diverse in experience. In two studies, the complexity of social loneliness was explored
in terms of cultural difference and diversity [69,82]. Social loneliness was conceptualised
as embodied and culturally nuanced in terms of physical, emotional, and spiritual ex-
pression [69]. Disrupted cultures and communities were linked with diverse cultural
experience of loneliness [82]. Severe mental illness (SMI) had the effect of reducing or
changing social networks even though many people with SMI desired to have greater social
Int. J. Environ. Res. Public Health 2021, 18, 11522 10 of 19

networks [93]. Social loneliness was also characterised as emotionally as well as socially
excluding and reported as the feeling of being somehow removed from life [63]. Such
findings demonstrate some overlap with existential types of loneliness for those living with
mental health conditions [63].

4. Discussion
Principal Findings and Contribution to Knowledge
The findings in this review support calls for better understandings of the complexity
of loneliness in different population groups and social contexts [179,180] to inform policy-
makers and practitioners in the field. We have thematically synthesised the evidence for
three types of loneliness: social, emotional, and existential. This supports but significantly
develops a preliminary typology of loneliness, focused only on loneliness in healthcare
research [181].
In summary of our findings, social loneliness describes the perception of dissatisfaction
with the quality of relationships [182] and as a discrepancy between the actual and desired
quantity and quality of social interactions [28,133,183]. This type of loneliness most closely
reflects established ways in which loneliness is defined and measured in the current
literature, where it is understood as a negative experience in which our social relations
are deficient in some way, quantitively or qualitatively [184]. It also reflects the evidence
showing correlations between loneliness and poor physical and mental health [5,14].
Emotional loneliness arises from the absence or loss of meaningful relationships,
possibly of a primary attachment figure, such as a spouse. Emotional loneliness is also a
consequence of a loss of health and social opportunities that are not easily replaceable. It is
also interconnected with not meeting the need to be recognised and to belong. This type
of loneliness reflects the extant literature, which identifies the connection between feeling
lonely and distressed, emptiness, and loss [135]. Moreover, existential loneliness describes
an expression of separateness from others that can occur at any time, but particularly so
when facing life threatening illnesses, trauma, and one’s mortality [159,185].
Central to our findings is the implication that unlike social loneliness, emotional and
existential loneliness may not be relieved by interventions focused on social connectedness
and integration into a social community. Hence, a key finding from this review is that
it provides a more nuanced understanding of loneliness, which can inform a targeted
approach to alleviating loneliness, particularly in policy and intervention work.
Our review identifies some key gaps in the literature on loneliness. We found only two
published studies focussed on the link between emotional loneliness in young people living
with a parent with cancer [139]; children of Holocaust survivor parents, [149]). Innovative
work reported in the grey literature shows that emotional loneliness in youth is complex
and associated with a variety of life experiences [118,186]. Indeed, feelings of loneliness
arise during key moments of transition in life, and they are unlikely to be fully captured
by the current static and unidimensional definitions that solely focus on the quality and
quantity of social relationships. This links to another key gap we found in that there is a
dearth of studies on loneliness across the life course since this could show how loneliness is
experienced distinctly at different points in time and through different life events [187–189]
The review also identified a lack of studies on loneliness and inequalities, such as socio-
economic status and disability, since the included studies present thin demographic data.
This, therefore, provides a direction for future research in this area.
More specifically, our review also highlights the importance of conceptualising exis-
tential loneliness in order to design effective interventions in circumstances and contexts in
which people feel hopelessly detached from social life or misunderstood [190]. The extant
literature on existential loneliness has predominantly focussed on chronic illness [172] and
end-of-life care [181]. However, our review reveals other contexts in which existential
loneliness requires attention. In studies of mental health, existential loneliness appears to
be conceived as the sense of physical separation from others, sometimes as a development
from having a disturbed self-image or as a consequence of being unable to form social
Int. J. Environ. Res. Public Health 2021, 18, 11522 11 of 19

connections, resulting in feelings of exclusion from normal life, stigma, emptiness, and
being an outsider.
Each type of loneliness and the potential overlaps between them illustrates the di-
verse and complex interplay between social, psychological, and contextual factors which
contribute to loneliness and potentially its alleviation in people’s lives. Understanding
these conceptual differences demonstrates the need for theoretical development in multi-
dimensional studies of loneliness, critical reviews of and methodological developments
in both how loneliness is measured, and the interventions that need to be designed and
implemented. At present, the current definition of loneliness is not sufficiently broad in its
scope or sophisticated in its conceptualisation to capture the range, diversity, and depth of
experiences that people define as lonely [17,191]. It also often confuses loneliness, a subjec-
tive phenomenon, with social isolation, an objective condition arising from quantitatively
diminished social networks [28,44]. Imprecise definitions and, indeed, generalised and
broad measures will limit understanding of the impact of loneliness on health.
Most studies in our review focused on social loneliness (n = 108), reflecting the current
academic focus. Using the CERQual rating, we have high confidence in this evidence.
However, there was a dearth of studies examining emotional loneliness (n = 27) and
existential loneliness (n = 20), and both these types of loneliness have been found to be
associated with negative health outcomes. This reflects both the more recent emergence
of these two types of loneliness as distinct conceptual and empirical entities. The most
established measures of loneliness implicitly or explicitly focus on social loneliness. These
findings suggest a need for detailed studies of these different types of loneliness and points
to the scope for public health policy and practice developments rooted in an understanding
of loneliness types, interactions, and settings. We need to comprehend more clearly who
feels lonely, when, where, and in what context.

5. Conclusions
5.1. Strengths and Limitations
The rigorous and systematic search strategy and comprehensive nature of this review
is a strength. We focused on loneliness only and did not include social isolation and other
similar concepts. The pre-publication of our protocol on PROSPERO ensured method-
ological transparency and mitigated any potential post-hoc decision-making, which may
have introduced bias. Dual screening of the searches and data extraction and independent
quality assessment of the included reviews ensured a rigorous process.
Systematic reviews and evidence syntheses of conceptual frameworks and models are
unusual, and methods for such reviews are not yet well-developed. Our use of a PEEST
inclusion criteria meant that the types of studies we were interested in were clear to all team
members. The focus on concepts, models, theories, and frameworks of loneliness means
that it is possible that some relevant evidence was not included. Seventeen potentially
includable studies were unavailable, and they may have influenced findings had they been
available. There is also a potential risk of publication lag where possible important new
evidence has not yet been included in published articles and reports, and thus not identified
and included. The grey literature search was used to mitigate that risk in part. The use of
the CERQual criteria also acts as a checklist as much as an evaluative tool or measure of
quality. A consistent approach to judgements across the different interventions has been
applied, but it should be recognised that these judgements are open to interpretation.

5.2. Implications for Policymakers and Future Research


Our review identified an extensive qualitative literature conceptualising social, emo-
tional, and existential loneliness, providing theoretical frameworks for understanding
loneliness that are adaptable for decision-making in policy and practice. The literature is
dominated by research conceptualising social loneliness, which understates the potential
significance of emotional and existential loneliness. We suggest that a parallel review
Int. J. Environ. Res. Public Health 2021, 18, 11522 12 of 19

evaluating how loneliness is conceptualised in our commonly used measurement tools


would be valuable.
Improved measures and high-quality mixed-methods studies would help to address
this. We would recommend rigorous and systematic quantitative methods, longitudinal
process evaluations, and cost effectiveness evaluations alongside appropriate qualitative
methodologies and analytical techniques. Research, policy, and practice approaches to
loneliness can be enhanced through co-production methods involving mutually beneficial
working practices in service design, implementation, and evaluation.

5.3. Concluding Remarks


This systematic review summarises all the available qualitative literature on concep-
tualising social, emotional, and existential loneliness in diverse adult populations. Our
evidence base would benefit from an improved understanding of these different types of
loneliness, their inter-relationships, and how these may vary across the life course. Such
evidence would underpin more effective decision-making and intervention development
and influence developments in measuring loneliness. This would enable policymakers and
practitioners to determine what intervention would work, for whom, and in what context.
Our findings showed that there is a lack of detail in the literature on loneliness and
inequalities (gender, ethnicity, disability, and socio-economic status) because of limited
reporting of demographic data in the included studies. There remains, therefore, a need
for future rigorous research on loneliness and inequality to understand how loneliness
may be experienced differently and thus how to address the detrimental health effects
of the interaction of these issues. The findings will be useful for decision-making in
public policy and practice that seeks to identify who is lonely, why loneliness occurs,
how it is experienced, and the most effective ways to alleviate loneliness or optimise the
positive aspects of solitude for enhanced health and wellbeing outcomes. If public health
interventions and policy decisions for alleviating loneliness are not based on accurate
definitions and understandings, it is unlikely that they will be effective.

Supplementary Materials: The following are available online at https://www.mdpi.com/article/10


.3390/ijerph182111522/s1, Supplementary S1: Search strategy; Supplementary S2: Table of excluded
studies; Supplementary S3: Characteristics of included studies conceptualising loneliness (published
and unpublished literature); Supplementary S4: Quality checklist scores for qualitative studies
(published); Supplementary S5: Quality ratings for grey (unpublished) studies; Supplementary S6:
CERQual qualitative evidence profile.
Author Contributions: The review was conceived and designed and the protocol developed by L.M.,
C.M., N.D., A.T. and C.V.; article screening was carried out by L.M., C.M., N.D., A.T., J.L., K.G. and
C.V.; data extraction, quality checks of data and interpretation were completed by L.M., C.M., N.D.,
A.T., J.L., K.G. and C.V.; and the was manuscript drafted by C.M. and L.M. and critically reviewed,
updated, and edited by N.D., A.T., J.L., K.G., A.G. and C.V. All authors have read and agreed to the
published version of the manuscript.
Funding: This study was funded by the Economic and Social Research Council (ES/NOO3721/1).
Institutional Review Board Statement: Not applicable.
Informed Consent Statement: Not applicable.
Data Availability Statement: All summaries of data are available in the Supplementary Material.
Acknowledgments: The authors acknowledge the expert support for the searches provided by
library-based information scientists at Brunel University London and the University of Brighton. We
also acknowledge the support of doctoral researchers at Brunel University London in completing the
updated review (Helen Pickford, Amelia Beddoe, and Jake Gifford).
Conflicts of Interest: The authors declare no conflict of interest.
Int. J. Environ. Res. Public Health 2021, 18, 11522 13 of 19

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