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The document summarizes a research study on continuity of care for children with special healthcare needs. The study found that continuity of care is important for parents during their child's hospitalization, discharge, and after discharge. Parents valued empowerment to help cope with their new responsibilities at home. They also saw the family pediatrician as central in coordinating care across providers. The conclusions are that care coordination is complex across hospital and community settings. The findings provide insight into parents' experiences and perceptions around continuity of care for their special needs children.

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JIRAH MAY NAELGA
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46 views1 page

Ebr 1

The document summarizes a research study on continuity of care for children with special healthcare needs. The study found that continuity of care is important for parents during their child's hospitalization, discharge, and after discharge. Parents valued empowerment to help cope with their new responsibilities at home. They also saw the family pediatrician as central in coordinating care across providers. The conclusions are that care coordination is complex across hospital and community settings. The findings provide insight into parents' experiences and perceptions around continuity of care for their special needs children.

Uploaded by

JIRAH MAY NAELGA
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
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Download as DOCX, PDF, TXT or read online on Scribd
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FATHER SATURNINO URIOS UNIVERSITY

San Francisco St. Butuan City 8600, Region


XIII Caraga, Philippines
Nursing Program

EVIDENCE-BASED READING NO. 1

Title/ Topic
Continuity of care in children with special healthcare needs

Research Findings
To parents of children with special health care needs, the three domains of
continuity of care were relevant in a whole but with different key elements during
hospitalization, at discharge and after discharge. Moreover, empowerment
emerged from parents’ narratives as essential to help parents cope with the
transition from the hospital setting to the new responsibilities connected with the
home care of their child. Parent’s perceptions about the family paediatrician
concerned his/her centrality in the activation and coordination of the healthcare
network. Moreover, parents exhibited different attitudes towards involvement in
decision making some wished and expected to be involved, others preferred not to
be involved.

Conclusion
Care coordination for children with special care needs is a complex process
that need to be attended to during the hospitalization phase and after discharge
to the community. The findings of this study may contribute to elucidating the
perceptions and experiences of parents with children with special health care
needs about the continuity of care from hospital to community care

Analysis
In this study the directed approach to qualitative content analysis was
chosen and used to validate or extend conceptually the theoretical framework of
continuity of care. Based on operational definitions of the three types of
continuity of care category codes were defined a priori and applied to the relevant
text. Informational continuity of care addresses “the use of information on past
events and personal circumstances to make current care appropriate for each
individual” among providers and among healthcare events. Management continuity of
care refers to “a consistent and coherent approach to the management of a health
condition that is responsive to a patient’s changing needs”, which is especially
important in chronic or clinically complex diseases. Relational continuity of care
addresses “an ongoing therapeutic relationship between a patient and one or more
providers”, which bridges past to current care and provides a link to future care.

Reference
Elisa Zanello, Simona Calugi, Paola Rucci, Giulia Pieri, Silvia Vandini, Giacomo Faldella,
Maria Pia Fantini and Zanello et al. Italian Journal of Pediatrics (2015)

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