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Sharing Example Data Sharing Plan

This data sharing plan outlines what data will be shared, who will have access, where the data will be available, when it will be shared, and how researchers can locate and access the data. Genotypic and phenotypic data from collected samples will be deposited in an NIH-funded repository. Data will be shared with investigators from institutions with a Federalwide Assurance and can be used for secondary analysis. The data will be deposited and maintained in the NIH-funded repository within one year of project completion or publication/patent submission. The repository has policies for qualified researchers to access data consistent with NIH sharing policies.

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116 views1 page

Sharing Example Data Sharing Plan

This data sharing plan outlines what data will be shared, who will have access, where the data will be available, when it will be shared, and how researchers can locate and access the data. Genotypic and phenotypic data from collected samples will be deposited in an NIH-funded repository. Data will be shared with investigators from institutions with a Federalwide Assurance and can be used for secondary analysis. The data will be deposited and maintained in the NIH-funded repository within one year of project completion or publication/patent submission. The repository has policies for qualified researchers to access data consistent with NIH sharing policies.

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Anonymous oxms9Dz
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Example Plan addressing Key Elements for a Data Sharing Plan under NIH Extramural Support

(For questions, contact the NIH Office of Extramural Research (OER), Email [email protected])
Example Data Sharing Plan for FOA--
!hat data that "ill #e shared$
I !ill share "henot#"ic $ata associate$ !ith the collecte$ sam"les %# $e"ositing these $ata at
&&&&&&&&&&&&&&&& !hich is an NIH'fun$e$ re"ositor#. (enot#"e $ata !ill %e share$ %# $e"ositing
these $ata at &&&&&&&&&&&&&&&&. )$$itional $ata $ocumentation an$ $e'i$entifie$ $ata !ill %e $e"osite$
for sharing along !ith "henot#"ic $ata, !hich inclu$es $emogra"hics, famil# histor# of ******
$isease, an$ $iagnosis, consistent !ith a""lica%le la!s an$ regulations. I !ill com"l# !ith the NIH
(+)S ,olic# an$ the fun$ing I-.s existing "olicies on sharing $ata on ****** $isease genetics to
inclu$e secon$ar# anal#sis of $ata resulting from a genome !i$e association stu$# through the re"ositor#.
/eta'anal#sis $ata an$ associate$ "henot#"ic $ata, along !ith $ata content, format, an$ organi0ation, !ill
%e aaila%le at &&&&&&&&&&&&. Su%mitte$ $ata !ill confirm !ith releant $ata an$ terminolog#
stan$ar$s.
!ho "ill ha%e a&&ess to the data$
I agree that $ata !ill %e $e"osite$ an$ ma$e aaila%le through &&&&&&&&&&&&&&&& !hich is an NIH'
fun$e$ re"ositor#, an$ that these $ata !ill %e share$ !ith inestigators !or1ing un$er an institution !ith a
Fe$eral +i$e )ssurance (F+)) an$ coul$ %e use$ for secon$ar# stu$# "ur"oses such as fin$ing genes
that contri%ute to "rocess of ******. I agree that the names an$ Institutions of "ersons either gien or
$enie$ access to the $ata, an$ the %ases for such $ecisions, !ill %e summari0e$ in the annual "rogress
re"ort. /eta'anal#sis $ata an$ associate$ "henot#"ic $ata, along !ith $ata content, format, an$
organi0ation, !ill %e ma$e aaila%le to inestigators through &&&&&&&&&&&&.
!here "ill the data #e a%aila#le$
I agree to $e"osit an$ maintain the "henot#"ic $ata, an$ secon$ar# anal#sis of $ata (if an#) at
&&&&&&&&&&&&&&&&, !hich is an NIH'fun$e$ re"ositor# an$ that the re"ositor# has $ata access "olicies
an$ "roce$ures consistent !ith NIH $ata sharing "olicies.
!hen "ill the data #e shared$
I agree to $e"osit genetic outcome $ata into &&&&&&&&&&&&&&&& re"ositor# as soon as "ossi%le %ut no
later than !ithin one #ear of the com"letion of the fun$e$ "ro2ect "erio$ for the "arent a!ar$ or u"on
acce"tance of the $ata for "u%lication, or "u%lic $isclosure of a su%mitte$ "atent a""lication, !hicheer is
earlier.
Ho" "ill resear&hers lo&ate and a&&ess the data$
I agree that I !ill i$entif# !here the $ata !ill %e aaila%le an$ ho! to access the $ata in an# "u%lications
an$ "resentations that I author or co'author a%out these $ata, as !ell as ac1no!le$ge the re"ositor# an$
fun$ing source in an# "u%lications an$ "resentations. )s I !ill %e using &&&&&&&&&&&&&&&&, !hich is an
NIH'fun$e$ re"ositor#, this re"ositor# has "olicies an$ "roce$ures in "lace that !ill "roi$e $ata access
to qualifie$ researchers, full# consistent !ith NIH $ata sharing "olicies an$ a""lica%le la!s an$
regulations.
Re. 34544675

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