Ultragenyx reposted this
In recognition of #RareDiseaseDay, our member companies have been raising awareness of policy issues in Washington, DC. Did you know that 95% of rare diseases lack a treatment, leaving patients and their families without hope? Companies like Ultragenyx are on the front lines of innovation, investing in solutions that larger treatment developers may ignore. “The goal is to relieve families from the challenge of finding the treatment that will transform their loved one’s life,” explained Betsy Ricketts, Vice President, Government and Public Affairs. That’s something we can all get behind.
