Ultragenyx’s Post

📣 FULL NEWS RELEASE! 📣 We're thrilled to announce that @CreatineInfo/@Association for Creatine Deficiencies Vice Board Chair Jeffrey Randall Allen was crowned CHAMPION of #BeastGames—winning $10 million! 🏆🎉 But Jeff wasn’t just competing for himself—he fought for his son Lucas, who lives with Creatine Transporter Deficiency (CTD). Jeff’s win could not  have come at a better time in the fight to cure creatine deficiencies. “Now, we stand at a crucial juncture, poised to transition from the lab to the clinic. This move demands substantial new investment, which is why we've initiated an ambitious campaign to raise $30 million to propel our most promising treatments into clinical trials,” - Heidi Wallis, ACD Executive Director 👏💙 Congratulations, Jeff and Lucas! Your victory is a huge win for the entire rare disease community. Read more: https://lnkd.in/gAdwDcAw #BeastGamesChampion #RareDisease #CTDAwareness #CreatineDeficiencyResearch #CreatineInfo #CreatineResearch #ACDResearch #RareDiseaseAwareness #RareDisease