Jennifer Chandler’s Post

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Professor at University of Ottawa

Privacy of Brain Data There has been a lot of noise this month about California's amendment to consumer privacy laws to make it clear that data about brain activity will be protected as "sensitive personal information." I've had the chance to speak about this and other legal aspects of brain data privacy (structural info as well as info about brain activity) in the English and French language media over the last month (see below). There is a range of views to be seen on whether existing and near-term neurotechnologies pose a threat to privacy - these views range from "nothing to see here" all the way to "this can read your mind." Ethicists have an incentive to find and point out interesting things to be worried about, and perhaps sometimes this gets over-heated. At the same time, note an old warning from Plato in the Phaedrus (Socrates is recounting a discussion on whether the human faculty of memory would be destroyed by the innovation of writing) - "the parent or inventor of an art is not always the best judge of the utility or non-utility of his own inventions to the users of them." The developers of new tools may not see - or have incentive to see - the full path that their new tools will take and how they will be repurposed. As is usually the case, we are at present somewhere in the middle, and whether there's a serious issue depends upon which kind of brain data, what type of inference is to be drawn, and for what reason. Also - relying upon consumer knowledge and consent to protect privacy is demonstrably not very effective. Also keep in mind that in some contexts, the freedom to choose whether or not to share data is greatly constrained. In my view from the mushy middle - it is wise to try to anticipate in a reasonable manner. We don't want to throw the baby out with the bathwater by raising problems that will damage a promising field, and we don't want to sleepwalk into problems that could be headed off ahead of time. Do we need laws on this? In some places, existing privacy laws already capture brain data as personal information. We will likely see more legislative change in the coming months and years. Goodyear S. Why your brain could be the next frontier of data privacy. As it Happens. CBC. (11 October 2024) https://lnkd.in/eBCMZfeW Mullin E. I tried these brain-hacking headphones that claim to improve focus. (24 September 2024) https://lnkd.in/epn56yC5 Robitaille-Grou P. Neurotechnologies commerciales : un far west à l’abri des normes médicales. Radio-Canada (29 August 2024) https://lnkd.in/emWfBC4b California law here: https://lnkd.in/eHitYyre

SB-1223 Consumer privacy: sensitive personal information: neural data. (2023-2024)

SB-1223 Consumer privacy: sensitive personal information: neural data. (2023-2024)

leginfo.legislature.ca.gov

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