ICON’s Patient Centred Outcomes (PCO) team supports National Caregivers Day. With over 45 staff located across Europe and North America, the PCO team are constantly working to advance knowledge and research across numerous therapeutic areas, including understanding the burden on caregivers. The PCO team have produced a wide range of research involving family and informal caregivers. Here are some of PCO’s key publications which shine a spotlight on the valuable insights caregivers bring to our research. • Development of a signs and symptoms outcome measure for caregivers of patients with methylmalonic acidemia and propionic acidemia (MMAPAQ) https://ow.ly/ZiXt50UYrln • Patient and Caregiver Perspectives on Care-Seeking During a Vaso-Occlusive Crisis in Sickle Cell Disease: Results from Qualitative Interviews in Canada https://ow.ly/gS2G50UYrll • Lived experiences of patients with distal renal tubular acidosis treated with ADV7103 and of their caregivers: a qualitative study. https://ow.ly/FAiq50UYrlx • Perceived Unmet Needs in Patients Living With Advanced Bladder Cancer and Their Caregivers: Infodemiology Study Using Data From Social Media in the United States. https://ow.ly/QSS550UYrlH • Effect of Delayed-Release and Extended-Release Methylphenidate on Caregiver Strain and Validation of Psychometric Properties of the Caregiver Strain Questionnaire: Results from a Phase 3 Trial in Children with Attention-Deficit/Hyperactivity Disorder. https://ow.ly/4jP950UYrlk #NationalCaregiversDay #ICONplc #Caregivers #PatientCentredOutcomes
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17hCaregivers are a vital part of everyone's healthcare team. Patient centered outcomes depend on their input and a focus on their issues, as well. These are great examples of how ICON is ensuring that perspective is incorporated.