Dayton Children's Hospital’s Post

At just 11 weeks old, Violet’s parents noticed unusual movements from their daughter that led them to the emergency department at Dayton Children’s. After extensive testing, she was diagnosed with Aicardi Syndrome, a rare genetic disorder that affects brain development, vision, and causes seizures. When it mattered most, Violet’s family turned to her trusted care team for answers. Neurologist, Dr. Debra O’Donnell, not only understood Aicardi Syndrome but had also cared for other children with the same condition. With her guidance and the support of a dedicated team, Violet began treatment to manage her seizures and started therapy to help with her development. ✨ "With the support from Dayton Children's and our family, we quickly turned our grief into focus and started to identify what was within- our control and putting everything in place to set Violet up for success after her discharge," says Elizabeth, Violet's mom. ✨ Today, Violet continues to make incredible progress through outpatient therapy with neurology, developmental pediatrics, physical medicine, and ophthalmology specialists. Every milestone she reaches is a testament to her resilience, her family’s strength, and the compassionate care at Dayton Children’s. Check out Violet's full story at: https://lnkd.in/eagAe9RA