🦋🏃 #dash4DEBRA is coming up on Sunday, August 24th in Lake Forest, IL! Even if you are unable to attend in person, please consider supporting debra of America to help improve the lives of those impacted by Epidermolysis Bullosa (EB), like Will and Demah. 👉 You can donate through our Urgo Medical team fundraiser page at https://lnkd.in/grAqH4f3 #EpidermolysisBullosa #debraofAmerica
🌟 Meet Will & Demah. Join Their Crew at the 11th Annual #dash4DEBRA 🌟 Have you registered yet for the 11th Annual dash4debra in Lake Forest, IL on Sunday, August 24th? 💙 This year, we’re honored to be joined by EB mom Elizabeth Hoffman and her incredible family—including her two young children, Will and Demah, who were both born with Epidermolysis Bullosa (EB). Will, almost 2, is pure joy. He’s full of belly laughs, silly faces, and the biggest snuggles. He loves cars (“beep beep!”) and won’t go to sleep without “Roar,” his beloved dinosaur buddy. 🦖 Demah, age 4, is petite but fierce—a true force of nature. Diagnosed with Junctional EB at birth, she’s faced unimaginable challenges with a spirit that shines. She’s the kind of child who casts “magic” to find parking spots for Mom and pedals her bike "super fast". She adores princesses, but make no mistake—she is one, complete with strength, resilience, and courage. 👑💫 “An EB diagnosis can feel overwhelming,” Elizabeth shared, “but Will and Demah remind us every day that it doesn’t define them. Instead, it reveals their strength, joy, and the beautiful uniqueness that makes them who they are.” Join us in cheering on Demah & Will’s Crew at this year’s #dash4DEBRA as they take on their first-ever dash in support of all those living with EB. Together, we raise awareness, hope, and critical funds to fight this devastating disease. 👉 Register today: https://lnkd.in/g58PfwMW 🙏 Can’t make it in person? Support their team here: https://lnkd.in/gzzWX359 Together, we dash for a cure. 💜 #EpidermolysisBullosa #debraofAmerica