Rare Disease Day unites millions worldwide who face the challenges of rare conditions that often lack adequate treatments, research, and support. Held on February 29th (or 28th in non-leap years), this day raises essential awareness for the 300+ million people living with rare diseases globally. At Partner Rare, we're committed to transforming rare disease development through strategic expertise that bridges biopharma innovation with global market access. Every patient deserves hope, regardless of how rare their condition. Today and every day, we stand with the rare disease community in their journey toward better treatments and brighter futures. #RareDiseasesDay #RareDisease #PartnerRare
Partner Rare
Business Consulting and Services
Empowering Rare Disease Therapies into success.
About us
Partner Rare: Empowering Rare Disorder Solutions Navigating the complexities of the rare disorder market demands exceptional expertise. Partner Rare, a global consultancy firm, empowers rare disorder companies to bring their life-changing solutions to patients in need. Our team of seasoned industry experts provides comprehensive strategic advisory and consulting services, plus end to end project management to ensure your rare disorder assets achieve commercialization success across the globe. Contact us today to embark on a transformative journey with Partner Rare.
- Website
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http://www.partner-rare.com
External link for Partner Rare
- Industry
- Business Consulting and Services
- Company size
- 2-10 employees
- Headquarters
- Birmingham
- Type
- Privately Held
- Specialties
- rare diseases, pharmaceutical, biotechnology, Market Access , HEOR, Strategy, USA, Europe, Accelerator, Advisory, Consulting, EMA, Clinical Trials, APAC, Clinical Trial Design, Regulatory, and Legal
Locations
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Primary
Get directions
Birmingham, GB
Employees at Partner Rare
Updates
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As #RareDiseaseDay approaches, our consultant Aaron Blocker, MSc reminds us: Policy advocacy is essential for rare disease patients. #AdvocacyMatters #RareDiseasePolicy #MarketAccess
Executive Director @ Mississippi Rare Disease Advisory Council | Data & Analytics Consultant @ Franciscan Missionaries | Rare & Autoimmune Disease Leader
As Rare Disease Day approaches, it’s more important than ever to highlight the role of policy and legislative advocacy in supporting our community. For rare disease patients, the right policies can mean the difference between access to life-saving treatments and being left without options. In this ever-changing landscape, policies that support research funding, access to treatments, and patient protections are critical. Rare disease patients often face delayed diagnoses, limited treatment options, and financial barriers to care—challenges that can only be addressed through strong legislative action. Advocacy efforts, from securing federal research grants to pushing for state-level policies that improve insurance coverage and access to specialists, have a direct impact on patients’ lives. As someone who has spent years working to shape rare disease policy, I’ve seen firsthand how a single piece of legislation can mean the difference between hope and hardship for so many families. This Rare Disease Day, let’s raise our voices to ensure that no patient is left behind. Whether it’s supporting the Newborn Screening Saves Lives Act, the Orphan Drug Tax Credit, or state Rare Disease Advisory Councils, policy advocacy is how we drive meaningful change. #RareDiseaseDay #AdvocacyMatters #RareDiseasePolicy Global Genes National Organization for Rare Disorders
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Milestone achievement for #Resolution4Rare as 21 Member States and 184 organizations join forces. This week's Executive Board decision is critical for World Health Assembly adoption (May 2025). Scroll through the slides for a brief overview: #RareDiseases #WHA2025 #PatientAdvocacy #PublicHealth
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Advocating for Progress in Rare Disease Legislation Partner Rare stands with the United Mitochondrial Disease Foundation and other organizations in urging Congress to prioritize key rare disease legislative initiatives. These include the Accelerating Kids' Access to Care Act and the Rare Paediatric Disease Priority Review Voucher Program. These initiatives aim to accelerate the development of treatments for rare paediatric diseases and improve access to care for children with rare conditions. We believe that every child deserves the chance at a healthy life, regardless of their diagnosis. Click the link to review UMDF's letter to Congress and a list of the 137 organizations who have undersigned their support: https://lnkd.in/erABs_XQ #RareDisease #Advocacy #ChildrensHealth #PartnerRare
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As we reflect on 2024, Partner Rare is proud of the progress made in the rare disease domain. We're thrilled to be collaborating with clients on innovative approaches and excited to see further developments in 2025. From all of us at Partner Rare, we wish you and your families, a happy and successful New Year! #RareDisease #Innovation #PartnerRare
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The European Union's new Health Technology Assessment (HTA) regulation is a landmark change for those seeking regulatory approval for new drugs. The legislation aims to harmonize HTA processes across EU member states, streamlining the path to market. Partner Rare is closely monitoring these developments to ensure our clients remain informed and prepared 💚 Key insights in the slides below. #HTA #RareDiseases #MarketAccess #Europe #ClinicalTrials
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AI and Drug Repurposing: A Game Changer in Rare Disease Drug Development 🎯 The world's getting more expensive and the risks for drug development are getting higher, but the use of AI and drug repurposing is becoming a game changer in delivering unmet needs across the globe. Cost-effectiveness, reduced risk, and faster time to market all predict a higher chance of success. Now, if you're thinking about drug repurposing, this is something one of our Senior Strategic Advisors, Keith Williams, has done successfully a number of times. From development, to commercialization, through to successful exit, Keith is the guy you should speak to. Reposting Keith's brief overview of drug repurposing. https://lnkd.in/eF76Z2C7 Contact us to arrange a complimentary discussion with Keith or to discuss support for your rare disease pipeline. 💚PR #raredisease #AI #drugrepurposing #biotech #pharma #strategy
Hope for Rare Diseases: Drug Repurposing for Better Patient Care in Europe
https://partner-rare.com
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Finding the right CRO for your rare disease therapy can be a challenge 🧪 Partner Rare simplifies the journey. We act as an extension of your team, providing expert guidance and seamless CRO collaboration to accelerate your clinical trials. Learn how we ensure success, from tender management to trial execution. #RareDisease #Biotech #CRO #ClinicalTrials #DrugDevelopment
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💚 ERDERA Launches: A New Era for Rare Disease Research 💚 Europe unites to accelerate rare disease research and improve the lives of millions. Explore slides below for key insights on ERDERA's potential impact and how your organization can contribute. #RareDisease #ERDERA #Research #Collaboration #PartnerRare
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It's never too late to unlock hidden value in your rare disease R&D! Did you know that UK tax incentives can significantly reduce your R&D costs, even if you've already started development elsewhere? Check out these slides to learn how these incentives can benefit your company and how Partner Rare can help you maximize them. Contact us for a complimentary discussion to learn more on how our end-to-end services can support your goals, whilst lowering your costs and risks. [email protected] #Raredisease #Biotech #Pharma #RDtaxrelief #UKinnovation #Marketaccess
🔓 Unlock Hidden Value in Your Rare Disease R&D - It's Never Too Late! UK tax incentives can significantly reduce your costs and accelerate your research, even if you've already started development elsewhere. Partner Rare, with deep rare disease expertise and a proven track record in UK business management, can help you navigate the complexities and maximize your returns at any stage of your journey. Click through the slides to learn more about the UK's R&D Tax Incentives and how Partner Rare can provide a seamless, end-to-end solution. Schedule a complimentary discussion with our specialist R&D Tax advisors to understand how Partner Rare can maximize your effort whilst lowering your risks! #Raredisease #Biotech #Pharma #RDtaxrelief #UKinnovation #Marketaccess
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