CAPA's Managing Director, Laurie Proulx, was on Episode 78 of the Take a Pain Check Podcast where she shared her journey through life and experiences dealing with arthritis. She discusses living with juvenile idiopathic arthritis, searching for treatment, and the introduction of biologics. https://buff.ly/3YqXOVp #CAPA #CanadianArthritisPatientAlliance #Patient #Community #Advocacy #ChronicPain #Pain #Arthritis #InflammatoryArthritis #Osteoarthritis #JIA #JuvenileIdiopathicArthritis #RheumatoidArthritis #AnkylosingSpondylitis #Lupus #PsoriaticArthritis #SjogrensSyndrome #Hypertension #Ostepenia
Canadian Arthritis Patient Alliance
Non-profit Organizations
Greater Toronto Area, Ontario 174 followers
Grassroots patient organization lead by and for people with arthritis.
About us
The Canadian Arthritis Patient Alliance (CAPA) is Canada’s only independent, volunteer-based arthritis patient organization run by patients for patients. CAPA supports a community of people living with arthritis across the nation, believing that the first expert on arthritis is the person who lives with arthritis. Individuals with arthritis provide a critical voice and perspective that needs to be heard in research, clinical care, and decision-making. L'Alliance canadienne des arthritiques (ACA) est la seule organisation indépendante et bénévole de patients arthritiques au Canada, dirigée par des patients pour des patients. L'ACAP soutient une communauté de personnes vivant avec l'arthrite à travers le pays, car elle croit que le premier expert en matière d'arthrite est la personne qui vit avec l'arthrite. Les personnes atteintes d'arthrite représentent une voix et un point de vue critiques qui doivent être entendus dans la recherche, les soins cliniques et la prise de décision.
- Website
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www.arthritispatient.ca
External link for Canadian Arthritis Patient Alliance
- Industry
- Non-profit Organizations
- Company size
- 1 employee
- Headquarters
- Greater Toronto Area, Ontario
- Type
- Nonprofit
Locations
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Primary
Greater Toronto Area, Ontario, CA
Employees at Canadian Arthritis Patient Alliance
Updates
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Dr. Bindee Kuriya will be joining us at our Annual General Meeting to discuss the link between inflammatory arthritis and the associated risk of developing cardiovascular disease. She will talk about risk factors and practical ways to manage them. Register here https://buff.ly/4f2LCRO or by using the link in our bio. If you want to ask Dr. Kuriya any questions ahead of the webinar email them to [email protected] or DM us #CardiovascularHealth #CardiovascularDisease #CardiovascularDiseaseAndArthritis #CAPA #CanadianArthritisPatientAlliance #Patient #Community #Advocacy #Arthritis #InflammatoryArthritis #Osteoarthritis #JIA #JuvenileIdiopathicArthritis #RheumatoidArthritis #AnkylosingSpondylitis #Lupus #PsoriaticArthritis
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In case you missed our Back-To-School virtual drop-in with Mariah Z. Leach, you can now watch it on YouTube using the following link https://buff.ly/4hDY50b or by using the link in our bio under the "Events and Features" Mariah discusses parenting strategies for parents with chronic illnesses, like arthritis. #CAPA #CanadianArthritisPatientAlliance #MedicalCannabis #Arthritis #InflammatoryArthritis #Osteoarthritis #Cannabis #THC #CBD
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Canadian Arthritis Patient Alliance reposted this
Only a few minutes until the official start of the Grossesse en Santé hub at CHU Ste. Justine. Let’s continue the conversation about policies, research and support for medications in pregnancy… Anick Berard PhD FCAHS FISPE Hilary Brown Dr. Andrea C. Tricco IMPaCT Trials Canadian Arthritis Patient Alliance Ngawai Moss Fabiana Bacchini Antonella Scali Brenda Delodder Institute of Musculoskeletal Health and Arthritis (IMHA) Lauren Kelly, PhD, CCRP Nancy Butcher
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Do you have inflammatory arthritis and struggle with sleep? Join this study to participate in a CBT treatment to help people with arthritis improve their sleep! You may be eligible if: - You have an inflammatory rheumatic condition - Are between 18 - 80 years of age - Are a Canadian resident - Are experiencing trouble sleeping and suspect you might have insomnia To participate: Visit buff.ly/4fYiVG3 and answer a few quick questions about yourself, after which a research team member will contact you Email: [email protected] if you have any questions Da Costa Lab Centre universitaire de santé McGill - McGill University Health Centre #Sleep #Insomnia #CBT #Arthritis #InflammatoryArthritis #ChronicPain #Pain #Arthritis #Osteoarthritis #JIA #JuvenileIdiopathicArthritis #RheumatoidArthritis #AnkylosingSpondylitis #Lupus #PsoriaticArthritis
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Inscrivez-vous dès maintenant au lancement du carrefour Grossesse en santé ! Le Centre hospitalier universitaire mère-enfant du CHU Sainte-Justine lance son carrefour, en personne et virtuellement, le 19 novembre de 13h à 15h. Laurie Proulx, de l'ACPA, fera une présentation sur son expérience de l'accès aux médicaments pendant la grossesse. Utilisez ce lien pour vous inscrire https://buff.ly/3AyA0r3 Register now for the Healthy Pregnancy Hub launch! The CHU SAINTE-JUSTINE Centre hospitalier universitaire mère-enfant is launching their hub, both in-person and virtually, on November 19th from 1-3 PM. CAPA's own Laurie Proulx will be presenting on her experiences accessing medications during pregnancy. Use this link to register https://buff.ly/3AyA0r3 #CAPA #ACA #AllianceCanadienneDesArthritiques #CanadianArthritisPatientAlliance #Pregnancy #HealthyPregnancy #CHUSainteJustine #CentreHospitalierUniversitaireMereEnfant
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Join us on December 10th at our Annual General Meeting to hear Dr. Bindee Kuriya discuss the link between inflammatory arthritis and the associated risk of developing cardiovascular disease. She will also cover the risk factors and practical ways to manage them. Register here https://buff.ly/4f2LCRO or by using the link in our bio. If you want to ask Dr. Kuriya any questions ahead of the webinar email them to [email protected] or DM us #CardiovascularHealth #CardiovascularDisease #CardiovascularDiseaseAndArthritis #CAPA #CanadianArthritisPatientAlliance #Patient #Community #Advocacy #Arthritis #InflammatoryArthritis #Osteoarthritis #JIA #JuvenileIdiopathicArthritis #RheumatoidArthritis #AnkylosingSpondylitis #Lupus #PsoriaticArthritis
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We want to hear from you to help us identify our priorities for 2025! How are we doing? What more can we do to meet your needs? Take this 10-minute survey (available in English and French) to share your views and what is important to people with arthritis. https://buff.ly/3zhm4Rv For those who complete the survey, you will entered into a draw to be considered for three $50 Visa gift cards. The link is also in our bio. The survey is extended until November 15th! #CAPA #CanadianArthritisPatientAlliance #Arthritis #InflammatoryArthritis #Osteoarthritis #Patient #Community #Advocacy #CommunitySurvey #Survey #MembershipSurvey #Survey
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Canadian Arthritis Patient Alliance reposted this
Je suis fière de présenter mon expérience d’accéder les médicaments pendant ma grossesse au lancement de Grossesse en Santé d’ici quelques semaines - voir les détails d’inscription ci-bas (option virtuelle possible) I’m proud to be presenting my lived experiences of accessing medications during pregnancy at the launch of Grossesse en Santé in a few weeks - see registration details below (virtual option possible) Canadian Arthritis Patient Alliance Antonella Scali Dr. Andrea C. Tricco (she/her)Andre Picard SPOR Evidence Alliance Brenda Delodder Trish Barbato Lauren Kelly, PhD, CCRP Nancy Butcher Zal Press Enav Z. Zusman Hilary Brown Hayley Chapman Ngawai Moss Cristina Montoya Fabiana Bacchini Jeffrey Beach Hetty Mulhall CIHR Institute of Gender and Health | Institut de la Santé des Femmes et des Hommes des IRSC
INVITATION - Ne manquez pas le lancement du HUB Grossesse en santé le 19 novembre : une plateforme pancanadienne grand public qui regroupe une vaste gamme d’informations sur les médicaments et la grossesse. Quand? Mercredi le 19 novembre 2024, 13 h (H.N.E.) Où? En personne au CHU Sainte-Justine ou en virtuel (sur inscription) Bienvenue à tous et toutes! Information et inscription : https://lnkd.in/dP9JsMvc The Hospital for Sick Children IWK Health
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We’re lucky to have Linda Wilhelm as part of the CAPA team!
Member spotlight! In recognition of #NationalPainAwarenessWeek, we are pleased to feature Patient and Public Partner, Linda Wilhelm (Linda Wilhelm), and her significant achievements. Linda is the president of the Canadian Arthritis Patient Alliance (Canadian Arthritis Patient Alliance) and was previously on the Canadian Pain Taskforce as a person with lived experience, alongside numerous other committee roles over the past 20 years. Living with severe rheumatoid arthritis for over 40 years resulting in significant disability and chronic pain, Linda has ample expertise to help identify research gaps and translate research knowledge into improving the healthcare system for all patients. Discover Linda's publications and accomplishments: - Journal of Patient Experience - A Journey of Tapering: https://lnkd.in/guc2468a - CBC Article - Advocating for access to protein-based vaccines: https://lnkd.in/gvJa3tcD - Linda is co-leading a SPOR Evidence Alliance patient-driven project entitled, 'Biologics and Biosimilars for People with Rheumatoid Arthritis.' Learn more here: https://lnkd.in/e9MEfvPB