Hyper IgM Foundation
Improving the quality of life and long term outlook for patients with Hyper IgM
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Donate today in support of the Hyper IgM Foundation Help Us Find A Cure For Hyper IgM Syndrome, Support The Foundation During This Giving Season! Once again this year, a very generous Hyper IgM Family will be matching all donations towards our Giving Tuesday campaigns up to $10,000! !!! With this...
Hyper IgM Podcast - The HyperIgM Foundation
Hyper IgM Podcast - The HyperIgM Foundation
The Hyper IgM Podcast - YouTube
The Hyper IgM Podcast - YouTube
In the world of rare diseases, amplifying patient voices is crucial for empowering others to make informed treatment decisions and for providing insights to healthcare professionals and researchers about the patient experience and its impact on quality of life. With conditions like Hyper IgM Syndrome, a rare immune deficiency affecting one in a million individuals, the majority of those affected are children. Yet, narratives in the pediatric rare disease realm often stem from the perspectives of parents, medical professionals, or adult survivors. Breaking this mold, the Hyper IgM Foundation has launched an innovative podcast, where children affected by X-Linked Hyper IgM Syndrome share their own stories. Led by Ezra Fineman, a 15-year-old high school freshman and Hyper IgM patient, the podcast offers a fresh format. Here, young patients interview one another, providing intimate and informative conversations about their experiences with Hyper IgM Syndrome and life with a rare disease.
The Hyper IgM Podcast -Spotify
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Podcast
The Hyper IgM Podcast -Spotify
The HyperIgM Foundation
The HyperIgM Foundation
Teen hosts podcast featuring peers with hyper IgM syndrome | Immune Deficiency Foundation
Teen hosts podcast featuring peers with hyper IgM syndrome | Immune Deficiency Foundation
Ezra Fineman, a 15-year-old diagnosed with hyper IgM syndrome, hosts a podcast for the Hyper IgM Foundation where he interviews other teens who live with the condition.
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