Racing for a cure for Epidermolysis Bullosa (EH·pih·dur·MAH·luh·sis boo·LOW·suh)

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FULL MOVIE REVIEW: ELEMENTS OF MADNESS

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AMANPOUR: Race to Cure Life-Threatening Skin Disease May Be Key to Help Others

BARRON'S: Netflix Is Casting a Light on a Rare Disease. 

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As Matter of Time is now on Netflix, and we’re creating a way for people everywhere to share the collective energy of watching this powerful story together. 

Global Watch Parties will bring the magic of a premiere night straight into living rooms, backyards, school gyms, offices, and community spaces across the globe. 

Each host will receive a curated “Watch Party Kit” with everything needed to transform their gathering into a movie-night experience while raising critical funds and awareness for EB.

Host a Matter of Time Watch Party

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ROLLING STONE: Inside New Eddie Vedder Netflix Documentary, 'A Matter of Time'

DOUBLE YOUR DONATION HERE! Matter of Time $1 Million Match

Watch Matter of Time NOW on Netflix

DEADLINE: Eddie Vedder’s ‘Matter of Time’ Lands At Netflix

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Read about Matter of Time $1 Million Match for EB

AP NEWS: Eddie Vedder turns solo vulnerability into a powerful plea in Netflix’s ‘Matter of Time’

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FORBES Article - Eddie Vedder Amplifies Fight Against Childrens Butterfly Disease

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ROLLING STONE Article - Eddie Vedder Raises Awareness for Rare Disease in New Docu Clip

ZEVASKYN™ (prademagene zamikeracel) | RDEB Treatment

Historic achievement: FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community.

CNN Article - Matter of Time 

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