EB Research Partnership
Racing for a cure for Epidermolysis Bullosa (EH·pih·dur·MAH·luh·sis boo·LOW·suh)
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EBRP Suncatcher | 50% toward EB research
EBRP Suncatcher | 50% toward EB research
A small piece with a powerful purpose. These 4” suncatchers catch the light in the most beautiful way—casting soft, radiant color wherever they hang. Handcrafted in our new Fig color, each piece is designed to bring warmth, hope, and a little everyday magic into your space. Created in partnership with EB Research Partn
DOUBLE YOUR DONATION HERE! Matter of Time $1 Million Match
DOUBLE YOUR DONATION HERE! Matter of Time $1 Million Match
Support our cause by donating to Million Dollar Match Splash Page.
Read about Matter of Time $1 Million Match for EB
Read about Matter of Time $1 Million Match for EB
/PRNewswire/ -- EB Research Partnership (EBRP), the largest global nonprofit dedicated to funding research to treat and cure Epidermolysis Bullosa (EB), just...
NOW STREAMING ON NETFLIX
Host a Matter of Time Watch Party
Host a Matter of Time Watch Party
Watch Matter of Time NOW on Netflix
Watch Matter of Time NOW on Netflix
Eddie Vedder's soul-stirring Seattle benefit concert fuels this documentary about the race to cure the rare genetic disorder epidermolysis bullosa (EB).
REVIEW ON IMDB
REVIEW ON IMDB
REVIEW ON LETTERBOXD
REVIEW ON LETTERBOXD
Eddie Vedder's soul-stirring Seattle benefit concert fuels this documentary about the race to cure the rare genetic disorder epidermolysis bullosa (EB).
FULL MOVIE REVIEW: ELEMENTS OF MADNESS
FULL MOVIE REVIEW: ELEMENTS OF MADNESS
Matter of Time, Matt Finlin, Eddie Vedder, Jill Vedder, Dr. Jean Tung, Broken Social Scene, Kevin Drew, documentary, Netflix, Door Knocker Media, Vitalogy Foundation, streaming, epidermolysis bullosa
AMANPOUR: Race to Cure Life-Threatening Skin Disease May Be Key to Help Others
AMANPOUR: Race to Cure Life-Threatening Skin Disease May Be Key to Help Others
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
CNBC Cures
CNBC Cures
AP NEWS: Eddie Vedder turns solo vulnerability into a powerful plea in Netflix’s ‘Matter of Time’
AP NEWS: Eddie Vedder turns solo vulnerability into a powerful plea in Netflix’s ‘Matter of Time’
BARRON'S: Netflix Is Casting a Light on a Rare Disease.
BARRON'S: Netflix Is Casting a Light on a Rare Disease.
ROLLING STONE: Inside New Eddie Vedder Netflix Documentary, 'A Matter of Time'
ROLLING STONE: Inside New Eddie Vedder Netflix Documentary, 'A Matter of Time'
DEADLINE: Eddie Vedder’s ‘Matter of Time’ Lands At Netflix
DEADLINE: Eddie Vedder’s ‘Matter of Time’ Lands At Netflix
Donate in honor of John Hudson x SBSK 🦋
Donate in honor of John Hudson x SBSK 🦋
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Submit your art for the Abeona x EBRP community art book here!
Submit your art for the Abeona x EBRP community art book here!
EB Research Partnership is collaborating with Abeona Therapeutics to create a one-of-a-kind art book that showcases the creativity, resilience, and hope of the global Epidermolysis Bullosa (EB) community. The book will feature original paintings, drawin
Join The Effect | Monthly Giving 🦋
Join The Effect | Monthly Giving 🦋
Help & Learn EB
ebresearch.org
ebresearch.org
EB Research Partnership is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.
Donate today to help fund life‑saving research for EB 💙🦋
Donate today to help fund life‑saving research for EB 💙🦋
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Supporter Spotlights
Supporter Spotlights
For the Deshe Family, the mission is clear, “We would love to see this disease gone, and we want to be a part of helping eradicate it—forever.” Ari Deshe, the founder and chairman of Safe Auto...
Town Halls | Register + Read Recaps
Town Halls | Register + Read Recaps
RSVP for EBRP’s upcoming Town Hall. Join the conversation, ask questions, and learn about the latest in EB research and advocacy.
Research
Apply for a Grant
Apply for a Grant
Apply for an EBRP research grant. Support innovative projects aimed at finding a cure for Epidermolysis Bullosa.
Historic achievement: FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community.
Historic achievement: FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community.
ZEVASKYN™ (prademagene zamikeracel) | RDEB Treatment
ZEVASKYN™ (prademagene zamikeracel) | RDEB Treatment
Discover ZEVASKYN® (prademagene zamikeracel), durable wound healing for RDEB wounds—helping throughout all the different stages of wound healing
Press
CNN Article - Matter of Time
CNN Article - Matter of Time
“Matter of Time,” a documentary featuring legendary rocker Eddie Vedder premiering this fall at the Tribeca Film Festival, is being billed as much more than a concert film – it’s a rallying cry for action.
FORBES Article - Eddie Vedder Amplifies Fight Against Childrens Butterfly Disease
FORBES Article - Eddie Vedder Amplifies Fight Against Childrens Butterfly Disease
Eddie Vedder new documentary “Matter of Time” is powerful story about bringing science and celebrities together to cure devastating rare pediatric disease
ROLLING STONE Article - Eddie Vedder Raises Awareness for Rare Disease in New Docu Clip
ROLLING STONE Article - Eddie Vedder Raises Awareness for Rare Disease in New Docu Clip
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