rareminds
Counselling & Wellbeing for Rare Disease Communities
Listen to the Rareminds Podcast - Coping with fatigue
Podcast
·
Podcast
Listen to the Rareminds Podcast - Coping with fatigue
Rareminds Podcast · Episode
Watch the Rareminds Podcast - Coping with fatigue
Watch the Rareminds Podcast - Coping with fatigue
Rareminds CCO Kym Winter talks to Jess Hobart from The UK Mastocytosis Support Group about coping with exhaustion and fatigue.For more information about mast...
Coping with fatigue
Coping with fatigue
Rareminds CCO Kym Winter talks to Jess Hobart from The UK Mastocytosis Support Group about coping with exhaustion and fatigue.For more information about mast...
CamRARE's RAREsummit25 - A decade of impact. A future of possibilities
CamRARE's RAREsummit25 - A decade of impact. A future of possibilities
RAREsummit25 by CamRARE is a leading rare disease innovation event uniting patients, researchers, industry, and policymakers to drive progress in rare disease diagnosis, care, and treatment. Join us in Cambridge to connect, collaborate, and inspire change.
Coping with bereavement: losing a child
Coping with bereavement: losing a child
Liz Curtis's daughter Lily died at 8 months from mitochondrial disease. She talks with Raremind's Founder and CCO Kym about the impact on her and her family,...
Coping with bereavement: losing a child by Rareminds Podcast
Coping with bereavement: losing a child by Rareminds Podcast
Rareminds Podcast Videos
Rareminds Podcast Videos
Selected video recordings of the Rareminds podcast.To listen to all the episode please search 'Rareminds' on Spotify.
What is mindfulness? - Rareminds Podcast | Podcast on Spotify
Podcast
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Podcast
What is mindfulness? - Rareminds Podcast | Podcast on Spotify
EURORDIS-Rare Diseases Survey
EURORDIS-Rare Diseases Survey
Our new Rare Barometer study investigates the supports and resources that our community needs.
Glenn's story (video) - coming to terms with my rare condition
Glenn's story (video) - coming to terms with my rare condition
In the latest Rareminds podcast Glenn shares his experiences of how growing up with X-linked adrenal leukodystrophy, taking part in clinical trials as a chil...
Glenn's story - coming to terms with my rare condition (Rareminds Podcast S2E3)
Podcast
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Podcast
Glenn's story - coming to terms with my rare condition (Rareminds Podcast S2E3)
Rareminds Podcast · Episode
Talking about your rare condition (Rareminds Podcast S2E2)
Podcast
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Podcast
Talking about your rare condition (Rareminds Podcast S2E2)
Rareminds Podcast · Episode
Wellbeing Hub for anyone impacted by a rare condition
Wellbeing Hub for anyone impacted by a rare condition
These pages are also available in other languages. Please use the menu in the bottom right hand corner.
The value of community (Rareminds Podcast S2E1)
Podcast
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Podcast
The value of community (Rareminds Podcast S2E1)
Support our work
Support our work
Please let us know in the comments box anything you would like to add ie if your donation is made in the name of an individual/family, on behalf of an
Rareminds Podcast - Episode 8: Experiences of pre-implantation genetic testing
Podcast
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Podcast
Rareminds Podcast - Episode 8: Experiences of pre-implantation genetic testing
Rareminds Podcast · Episode
Rareminds Podcast - Episode 7: Men's mental health
Podcast
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Podcast
Rareminds Podcast - Episode 7: Men's mental health
Rareminds Podcast - Episode 6: Rare leaders: Mental health in the workplace
Rareminds Podcast - Episode 6: Rare leaders: Mental health in the workplace
Rareminds Wellbeing Hub
Rareminds Wellbeing Hub
These pages are also available in other languages. Please use the menu in the bottom right hand corner.
Rareminds Podcast: Episode 5 - Couples under pressure: Coping with change & loss
Rareminds Podcast: Episode 5 - Couples under pressure: Coping with change & loss
Rareminds Podcast: Episode 4 - You & your doctors: Navigating healthcare & building relationships
Rareminds Podcast: Episode 4 - You & your doctors: Navigating healthcare & building relationships
Rareminds Podcast: Episode 3 - Kelly’s Journey: Learning to Self Care as a Parent Carer
Rareminds Podcast: Episode 3 - Kelly’s Journey: Learning to Self Care as a Parent Carer
Rareminds Podcast: Episode 2 - Rare conditions & couple relationships
Rareminds Podcast: Episode 2 - Rare conditions & couple relationships
Rareminds Podcast: Episode 1 - How rare conditions can impact mental health
Podcast
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Podcast
Rareminds Podcast: Episode 1 - How rare conditions can impact mental health
Rare Minds Matter - Mental Health & Rare Disease Survey Report
Rare Minds Matter - Mental Health & Rare Disease Survey Report
Shop Online & Raise Money For Rareminds
Shop Online & Raise Money For Rareminds
Our Website
Our Website
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