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260316 // Checklista - studiedeltagande ME/CFS. RME om att delta i forskningsstudier - RME - Riksförbundet för ME-patienter
260316 // Checklista - studiedeltagande ME/CFS. RME om att delta i forskningsstudier - RME - Riksförbundet för ME-patienter
RME om att delta i forskningsstudier Utgångspunkten för RME:s policy när det gäller medlemmarnas deltagande i forskning är att ME/CFS är en allvarlig, kronisk, komplex multisystemsjukdom som dramatiskt begränsar aktivitetsnivån hos de som drabbas. Källa: IOM-rapporten Sammanfattning RME strävar efter att noga följa den forskning som bedrivs om ME/CFS. Vi söker samarbete och medverkar gärna […]
251130 // GoFoundMe, Donate: Help Marc escape medical harm and survive very severe ME
251130 // GoFoundMe, Donate: Help Marc escape medical harm and survive very severe ME
Marc Shcherbatko is a 21-year-old from Kharkiv, Ukraine, livi… Kollektivhaus Wurze needs your support for Help Marc escape medical harm and survive very severe ME
KONF/UTBILDN - ME/CFS o PC
2025 // KONFERENS 15 okt. - Treating ME/CFS and long Covid – options ahead
2025 // KONFERENS 15 okt. - Treating ME/CFS and long Covid – options ahead
Ny klinisk forskning: Treating ME/CFS and long Covid – options ahead Professor Klaus Wirth är en av höstens föreläsare För första gången kan vi presentera flera aktuella behandlingsstudier. Med hjälp av inbjudna forskare från Sverige, Tyskland, Nederländerna och USA gör vi en genomlysning av bland annat mitokondriell dysfunktion, neuroinflammation och skelettmuskulaturens funktion. Missa inte ”People […]
2025 // KONFERENS 7-8 maj, Stavanger - Digging Deeper, ME/Cfs and Long Covid. Arr: Norges ME-förening.
2025 // KONFERENS 7-8 maj, Stavanger - Digging Deeper, ME/Cfs and Long Covid. Arr: Norges ME-förening.
ME Konferansen vil gi deg et overblikk av forskning på feltet samt by på erfaringer fra klinisk praksis.
2025 // KONFERENS online 12-13 maj - Care, research, and treatment of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) and post-COVID syndrome. Arr: ME/Cfs Research Foundation.
2025 // KONFERENS online 12-13 maj - Care, research, and treatment of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) and post-COVID syndrome. Arr: ME/Cfs Research Foundation.
ME/CFS Research Foundation is a non-profit organization dedicated to advancing research and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.
OM ME/CFS OCH POSTCOVID
260217 // Dialogues for ME/CFS - Severe & Very Severe ME/CFS
260217 // Dialogues for ME/CFS - Severe & Very Severe ME/CFS
260120 // Film: Osynligt sjuk - min bästa vän har ME/CFS
260120 // Film: Osynligt sjuk - min bästa vän har ME/CFS
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
250825 // FILM - Doctors as Patients. By Anil Seth (a.o.)
250825 // FILM - Doctors as Patients. By Anil Seth (a.o.)
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
250707 // REPORTAGE - ME/CFS: The mysterious illness trapping people in their bodies
250707 // REPORTAGE - ME/CFS: The mysterious illness trapping people in their bodies
250709 // Svenska covidföreningen - Rapport om Sveriges postcovidsjuka.
250709 // Svenska covidföreningen - Rapport om Sveriges postcovidsjuka.
250630 // VIDEO, Gez Medinger - The Challenge of Evidence Based Medicine | Why Doctors Don't Get Long Covid
250630 // VIDEO, Gez Medinger - The Challenge of Evidence Based Medicine | Why Doctors Don't Get Long Covid
250501 // FILM - ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
250501 // FILM - ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
FORSKNING
260226 // Video: Interview with Professor Jonathan Edwards about BACME
260226 // Video: Interview with Professor Jonathan Edwards about BACME
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
260121 // Trajectory, healthcare utilisation and recovery in 3590 individuals with long covid: a 4- year prospective cohort analysis
260121 // Trajectory, healthcare utilisation and recovery in 3590 individuals with long covid: a 4- year prospective cohort analysis
251123 // Neurobiological and neuropsychological disturbance in EDS - Frontiers
251123 // Neurobiological and neuropsychological disturbance in EDS - Frontiers
251122 // Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome - ScienceDirect
251122 // Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome - ScienceDirect
251019 // 2025 Stanford symposium ME/CFS - Michelle James, PhD | Inflammation and mitochondrial dysfunction.
251019 // 2025 Stanford symposium ME/CFS - Michelle James, PhD | Inflammation and mitochondrial dysfunction.
250821 // Long-Term Effects of Cognitive Behavioral Therapy on Sickness Absence and Cognitive Functioning in Patients with Stress-Related Disorders: Secondary Results from a Randomized Clinical Trial | Psychotherapy and Psychosomatics | Karger Publishers
250821 // Long-Term Effects of Cognitive Behavioral Therapy on Sickness Absence and Cognitive Functioning in Patients with Stress-Related Disorders: Secondary Results from a Randomized Clinical Trial | Psychotherapy and Psychosomatics | Karger Publishers
250810 // Initial findings DecodeME genome - wide association study ME/CFS- The University of Edinburgh
250810 // Initial findings DecodeME genome - wide association study ME/CFS- The University of Edinburgh
250804 // Mitochondrial dysfunction in ME/CFS and Long Covid. Prof. K. Wirth. | Gez Medinger.
250804 // Mitochondrial dysfunction in ME/CFS and Long Covid. Prof. K. Wirth. | Gez Medinger.
250709 // BMC - SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis - Journal of Translational Medicine
250709 // BMC - SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis - Journal of Translational Medicine
250703 // SCIENCE DIRECT, MCAS - Prevalence and Treatment Response of Neuropsychiatric Disorders in Mast Cell Activation Syndrome.
250703 // SCIENCE DIRECT, MCAS - Prevalence and Treatment Response of Neuropsychiatric Disorders in Mast Cell Activation Syndrome.
250501 // SCIENCE - Sleep loss is a metabolic disorder
250501 // SCIENCE - Sleep loss is a metabolic disorder
250423 // NATURE MEDICINE - Women twice as likely to develop Alzheimer’s disease as men — but scientists do not know why.
250423 // NATURE MEDICINE - Women twice as likely to develop Alzheimer’s disease as men — but scientists do not know why.
250423 // JOURNAL OF CLINICAL NURSING - Effects of person-centred care in patients with chronic heart failure: the PCC-HF study
250423 // JOURNAL OF CLINICAL NURSING - Effects of person-centred care in patients with chronic heart failure: the PCC-HF study
250423 // EUROPEAN HEART JOURNAL - Effects of person-centred care in patients with chronic heart failure: the PCC-HF study
250423 // EUROPEAN HEART JOURNAL - Effects of person-centred care in patients with chronic heart failure: the PCC-HF study
250410 // NATURE COMMUNICATIONS, - A novel PLpro inhibitor improves outcomes in a pre-clinical model of long COVID - Nature Communications.
250410 // NATURE COMMUNICATIONS, - A novel PLpro inhibitor improves outcomes in a pre-clinical model of long COVID - Nature Communications.
250406 // SCIENCE ADVANCE - Demographic bias of expert-level vision-language foundation models in medical imaging
250406 // SCIENCE ADVANCE - Demographic bias of expert-level vision-language foundation models in medical imaging
20240404 // UK FITNET - Comparison of CBT vs activity management, remotely, to treat paediatric ME/Cfs - PubMed
20240404 // UK FITNET - Comparison of CBT vs activity management, remotely, to treat paediatric ME/Cfs - PubMed
240404 // MAGENTA trial - GET compared to activity management for paediatric ME/Cfs: pragmatic randomized controlled trial - PubMed
240404 // MAGENTA trial - GET compared to activity management for paediatric ME/Cfs: pragmatic randomized controlled trial - PubMed
ARTIKLAR
260209 // Debatt - Maktobalans och stigmatisering: När kritik mot vården felaktigt likställs med hot
260209 // Debatt - Maktobalans och stigmatisering: När kritik mot vården felaktigt likställs med hot
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2601222 // POTS - The invisible condition affecting 800,000 Australians - The Post
2601222 // POTS - The invisible condition affecting 800,000 Australians - The Post
It’s disabling, common, and mostly affects young women. So why don’t more people know about the condition POTS?
251227 // B12-brist: Svårställd diagnos med allvarliga konsekvenser | MåBra
251227 // B12-brist: Svårställd diagnos med allvarliga konsekvenser | MåBra
B12-brist missas ofta, inte minst för att blodproven ibland är normala. En ny analysmetod ska göra det lättare att ställa diagnosen.
251209 // The lingering shadow of epidemics: post-acute sequelae across history - ScienceDirect
251209 // The lingering shadow of epidemics: post-acute sequelae across history - ScienceDirect
250920 // Iron deficiency may affect nearly 1 in 3 Americans, new study finds
250920 // Iron deficiency may affect nearly 1 in 3 Americans, new study finds
250812 // Dödshjälp. Canada Gave Citizens the Right to Die. - The Atlantic
250812 // Dödshjälp. Canada Gave Citizens the Right to Die. - The Atlantic
250810 // Scientists find link between genes and ME/chronic fatigue syndrome | ME / Chronic fatigue syndrome I The Guardian
250810 // Scientists find link between genes and ME/chronic fatigue syndrome | ME / Chronic fatigue syndrome I The Guardian
250810 // Initial results - DecodeME - study project site
250810 // Initial results - DecodeME - study project site
250714 // ME/CFS Skeptic - What does deconditioning look like?
250714 // ME/CFS Skeptic - What does deconditioning look like?
250710 // TST - Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times
250710 // TST - Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times
250617 // Sjukhusläkaren - ”De tyckte att jag skulle bli bagare”
250617 // Sjukhusläkaren - ”De tyckte att jag skulle bli bagare”
250423 // VÅRDFOKUS - Professorn som riktar strålkastarljuset mot patienterna.
250423 // VÅRDFOKUS - Professorn som riktar strålkastarljuset mot patienterna.
250410 // NEWS MEDICAL AND LIFE SCIENCE - Scientists stop long -COVID symptoms in mice using a new antiviral compound.
250410 // NEWS MEDICAL AND LIFE SCIENCE - Scientists stop long -COVID symptoms in mice using a new antiviral compound.
250410 // LÄKARTIDNINGEN - Vi läkare är lika sköra som alla andra.
250410 // LÄKARTIDNINGEN - Vi läkare är lika sköra som alla andra.
250410 // LÄKARTIDNINGEN - Viktigt ta hand om våra vårdande kollegor.
250410 // LÄKARTIDNINGEN - Viktigt ta hand om våra vårdande kollegor.
250406 // SCIENCE - AI models miss disease in black and female patient.
250406 // SCIENCE - AI models miss disease in black and female patient.
250404 // Looking back on 2024 ME/CFS research - ME/CFS Skeptic
250404 // Looking back on 2024 ME/CFS research - ME/CFS Skeptic
250320 // YALE - Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses
250320 // YALE - Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses
250315 // Sifo: 280 000 svenskar är drabbade av postcovid - Svenska Covidföreningen
250315 // Sifo: 280 000 svenskar är drabbade av postcovid - Svenska Covidföreningen
250308 // ALTINGET - Kvinnor med adhd måste få rätt stöd och behandling - Altinget bc.se
250308 // ALTINGET - Kvinnor med adhd måste få rätt stöd och behandling - Altinget bc.se
250308 // Rapport - Vården ur befolkningens perspektiv
250308 // Rapport - Vården ur befolkningens perspektiv
250307 // 5 Years Later, Women Are Still Living With Long Covid
250307 // 5 Years Later, Women Are Still Living With Long Covid
250314 // LU - Järnbrist hos fler än var tredje gymnasietjej
250314 // LU - Järnbrist hos fler än var tredje gymnasietjej
250304 // HARVARD - Women and pain - Harvard Health Blog
250304 // HARVARD - Women and pain - Harvard Health Blog
250209 // KV - Hur mår vården? - Rapport Kunskapsverket 2025
250209 // KV - Hur mår vården? - Rapport Kunskapsverket 2025
GUIDER / RIKTLINKER
251127 // Riktlinjer VGR - Vitamin B12-och/eller folatbrist hos vuxna - Regional medicinsk riktlinje
251127 // Riktlinjer VGR - Vitamin B12-och/eller folatbrist hos vuxna - Regional medicinsk riktlinje
251130 // Vårdstöd svår ME/CFS - tvångsomhändertagande/felaktig vård
251130 // Vårdstöd svår ME/CFS - tvångsomhändertagande/felaktig vård
250722 // Pressrel. UK Government plan ME/CFS
250722 // Pressrel. UK Government plan ME/CFS
Better care for patients living with myalgic encephalomyelitis/chronic fatigue syndrome, with plans to invest in research and offer care closer to home.
250617 // AGA, kliniska riktlinjer - GI, autonom/immun dysfunktion hos patienter med hEDS
250617 // AGA, kliniska riktlinjer - GI, autonom/immun dysfunktion hos patienter med hEDS
250527 // Support Guide ME/CFS o PC - How to support your friend who lives with ME/CFS or long COVID – Emerge Australia
250527 // Support Guide ME/CFS o PC - How to support your friend who lives with ME/CFS or long COVID – Emerge Australia
250515 // BHC, Clinical Care Guidelines - PC, ME/CFS 2025
250515 // BHC, Clinical Care Guidelines - PC, ME/CFS 2025
250310 // BHC - Infoblad POTS
250310 // BHC - Infoblad POTS
ÖVRIGT
251021 // Anmälan - danska - Klage til Styrelsen for Patientsikkerhed 20.10.25
251021 // Anmälan - danska - Klage til Styrelsen for Patientsikkerhed 20.10.25
251021 // Anmälan - svensk ös. - Klage til Styrelsen for Patientsikkerhed 20.10.25
251021 // Anmälan - svensk ös. - Klage til Styrelsen for Patientsikkerhed 20.10.25
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