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Episode 52- Defending Medicaid with the MDA Advocacy Team - Quest | Muscular Dystrophy Association
Episode 52- Defending Medicaid with the MDA Advocacy Team - Quest | Muscular Dystrophy Association
In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most recent updates and information about Medicaid benefits, current legislative efforts and what MDA’s Advocacy Team is doing to protect those efforts, and how you can get involved. Please join us at: www.MDA.org/AdvocacySay no to Medicaid Cuts: www.MDA.org/MedicaidInterested in media engagement opportunities: email advocacy@mdausa.org
MDA Launches National ALS Awareness Campaign to Accelerate the Search for a Cure
MDA Launches National ALS Awareness Campaign to Accelerate the Search for a Cure
Building on its 75-year legacy of progress, MDA is reinforcing its commitment to the ALS community by driving momentum for treatments and expanding access to multidisciplinary care.
IAFF Professional Fire Fighters of New Hampshire Announce 38th Annual Trans-New Hampshire Bike Ride June 20-22 to benefit MDA
IAFF Professional Fire Fighters of New Hampshire Announce 38th Annual Trans-New Hampshire Bike Ride June 20-22 to benefit MDA
MDA Ambassador Fred Graves, who lives with limb-girdle muscular dystrophy, will be honored at the event. Concord, New Hampshire – Monday, April 28, 2025, Muscular Dystrophy Association (MDA) and International Association of Fire Fighters (IAFF) today announced the 38th Annual Trans-New Hampshire Bike Ride (TNHBR) to be held on Friday, June 20 through Sunday, June 22. Full itinerary for the route here. Registration for the TNHBR is now open here, and participants are encouraged to sign up early to secure their spot.
Full Ride Info – Trans-New Hampshire Bike Ride
Full Ride Info – Trans-New Hampshire Bike Ride
2025 Trans-New Hampshire Bike Ride
2025 Trans-New Hampshire Bike Ride
Join MDA and help me fund research for cures for MuscularDystrophy, ALS and related #neuromuscular diseases.
Golf Events at Championship Courses Across the Country Raise Funds for Families Living with Neuromuscular Diseases
Golf Events at Championship Courses Across the Country Raise Funds for Families Living with Neuromuscular Diseases
MDA Summer Camp Volunteer Sign Up
MDA Summer Camp Volunteer Sign Up
MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases.
2025 MDA Clinical & Scientific Conference Keynote
2025 MDA Clinical & Scientific Conference Keynote
2025 MDA Clinical & Scientific Conference - Dr. Robert Califf, former FDA CommissionerKeynote Speech
Register MDA's Wings Over Wallstreet
Register MDA's Wings Over Wallstreet
Donate In Honor of MDA Champion Jerry Lewis
Donate In Honor of MDA Champion Jerry Lewis
New Issue of Quest Magazine
New Issue of Quest Magazine
MDA Condemns Dismantling of the U.S. Department of Education, Voices Risk of Harm to Students with Disabilities
MDA Condemns Dismantling of the U.S. Department of Education, Voices Risk of Harm to Students with Disabilities
Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives
Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives
MDA celebrates 75 years of advocacy, research, and community support for muscular dystrophy and neuromuscular diseases.
MDA Ambassador Guest Blog: Finding My Way to a Sober and Healthy Way of Living - Quest
MDA Ambassador Guest Blog: Finding My Way to a Sober and Healthy Way of Living - Quest
Alcoholism is to give up everything for one thing. Sobriety is to give up one thing for everything. Our ambassador shares her story!
Make a Meaningful Difference for Families
Make a Meaningful Difference for Families
Your generosity today goes TWICE as far to accelerate research, care, and advocacy for families living with neuromuscular diseases. Make your gift by midnight on December 31 to double your impact and build on 75 years of progress.
FDA Approves Expanded Use of Eculizumab (Soliris) for Pediatric Myasthenia Gravis, Bringing New Treatment Options for Children
FDA Approves Expanded Use of Eculizumab (Soliris) for Pediatric Myasthenia Gravis, Bringing New Treatment Options for Children
Accommodations and Independence: Spreading My Wings on Campus - Quest | Muscular Dystrophy Association
Accommodations and Independence: Spreading My Wings on Campus - Quest | Muscular Dystrophy Association
Your present circumstances don't determine where you can go; they merely determine where you start. Our ambassador shares her story!
Fundraising Powered by OneCause, creator of BidPal
Fundraising Powered by OneCause, creator of BidPal
Meet the MDA Scholars
Meet the MDA Scholars
MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases.
Your Gift Fuels Progress for Today and Tomorrow
Your Gift Fuels Progress for Today and Tomorrow
For 75 years, MDA has fueled groundbreaking research, provided access to top-tier care, and strengthened families living with rare neuromuscular diseases. Your donation honors this legacy while making an immediate impact—helping families today and driving discoveries that will shape the future. Celebrate this milestone with a gift that changes lives.
Robert Califf, MD, MAAC, to Deliver Keynote Address at 2025 MDA Clinical & Scientific Conference
Robert Califf, MD, MAAC, to Deliver Keynote Address at 2025 MDA Clinical & Scientific Conference
Following the keynote address, Dr. Califf will participate in an expert panel discussing the evolving challenges in neuromuscular disease research and care, moderated by Sharon Hesterlee, PhD, Chief Research Officer, MDA. NEW YORK, Thursday, February 27, 2025 – The Muscular Dystrophy Association (MDA) announced today that Robert Califf, MD, MAAC, former Commissioner of the U.S.
MDA Conference 2025
MDA Conference 2025
MDA Statement on U.S. House Adoption of Budget Resolution
MDA Statement on U.S. House Adoption of Budget Resolution
Say NO to Medicaid Cuts
Say NO to Medicaid Cuts
Welcome to MDA's Product Guide
Welcome to MDA's Product Guide
Donate: MDA Atlanta Night of Hope
Donate: MDA Atlanta Night of Hope
18th Annual MDA Atlanta Night of Hope Gala to Benefit ALS Research Spotlights the Byars Family and Honors Choate Construction Company
18th Annual MDA Atlanta Night of Hope Gala to Benefit ALS Research Spotlights the Byars Family and Honors Choate Construction Company
Shamrocks: Donate or Find Your Local Retailer
Shamrocks: Donate or Find Your Local Retailer
Muscular Dystrophy Association Launches Nation's Largest St. Patrick’s Day Fundraising Campaign Celebrating 75 Years of Progress
Muscular Dystrophy Association Launches Nation's Largest St. Patrick’s Day Fundraising Campaign Celebrating 75 Years of Progress
Episode 49- Navigating Romance with MDA Ambassadors
Episode 49- Navigating Romance with MDA Ambassadors
MDA’s Urgent Call to Action: Lift Impediments to Collaborations on Research and Care Progress
MDA’s Urgent Call to Action: Lift Impediments to Collaborations on Research and Care Progress
MDA Ambassador Guest Blog: More Than a Mold: Building Authentic Love and Relationships - Quest
MDA Ambassador Guest Blog: More Than a Mold: Building Authentic Love and Relationships - Quest
Congress: Oppose Catastrophic Research Cuts
Congress: Oppose Catastrophic Research Cuts
NIH Cuts – Statement
NIH Cuts – Statement
Muscle Walk: Sign Up
Muscle Walk: Sign Up
Muscular Dystrophy Association Announces Muscle Walk Events throughout 2025 in Local Communities Across the Country
Muscular Dystrophy Association Announces Muscle Walk Events throughout 2025 in Local Communities Across the Country
FDA Approves New Tablet Form of Evrysdi for Treatment of Spinal Muscular Atrophy | Muscular Dystrophy Association
FDA Approves New Tablet Form of Evrysdi for Treatment of Spinal Muscular Atrophy | Muscular Dystrophy Association
International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Kathryn Moss - Quest
International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Kathryn Moss - Quest
MDA Condemns NIH Funding Cuts on Indirect Costs, Calls for Immediate Reversal
MDA Condemns NIH Funding Cuts on Indirect Costs, Calls for Immediate Reversal
Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives
Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives
Say NO to Medicaid Cuts
Say NO to Medicaid Cuts
NALC 2025
NALC 2025
Muscular Dystrophy Association Announces Eight Recipient Organizations of Advocacy Collaboration Grants
Muscular Dystrophy Association Announces Eight Recipient Organizations of Advocacy Collaboration Grants
PSA: View, Download, & Distribute
PSA: View, Download, & Distribute
Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives
Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives
MDA Launches 75th Anniversary Campaign and Premieres New PSA to Shine a Light on Rare Diseases
MDA Launches 75th Anniversary Campaign and Premieres New PSA to Shine a Light on Rare Diseases
Donate
Donate
MDA Announces 2025 MDA National Ambassador Lily Sander
MDA Announces 2025 MDA National Ambassador Lily Sander
Muscular Dystrophy Association’s Legacy Awards Honor Pioneers in Clinical Research and Community Impact at 2025 MDA Clinical & Scientific Conference in March
Muscular Dystrophy Association’s Legacy Awards Honor Pioneers in Clinical Research and Community Impact at 2025 MDA Clinical & Scientific Conference in March
Decades of Making a Difference: One Volunteer's Lasting Impact - Quest
Decades of Making a Difference: One Volunteer's Lasting Impact - Quest
Apply for the MDA College Scholarship Program
Apply for the MDA College Scholarship Program
Register for the 2025 MDA Clinical and Scientific Conference
Register for the 2025 MDA Clinical and Scientific Conference
MDA Merch Shop
MDA Merch Shop
MDA Caregiver Support Guide
MDA Caregiver Support Guide
MDA Resource Center
MDA Resource Center
Atlanta Night of Hope: Donate
Atlanta Night of Hope: Donate
2024 IAFF Fill the Boot
2024 IAFF Fill the Boot
MDA Care Center Network
MDA Care Center Network
Welcome to MDA's Product Guide
Welcome to MDA's Product Guide
Subscribe to MDA Quest Media
Subscribe to MDA Quest Media
Guide for Caregivers
Guide for Caregivers
MDA Resource Center
MDA Resource Center
Gene Therapy Community Support
Gene Therapy Community Support
Become a Volunteer
Become a Volunteer
Advocate With Us
Advocate With Us
Quest Podcast - Listen
Quest Podcast - Listen
MDA Let's Play Twitch
MDA Let's Play Twitch
MDA Calendar of Events
MDA Calendar of Events
Like us on Facebook
Like us on Facebook
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Follow us on X
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Follow us on Threads
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Follow us on TikTok
Muscular Dystrophy Association
Muscular Dystrophy Association
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