@LunaTheZebraMom
Comedienne & Cohost of The Hacking Hypermobility Podcast
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TikTok
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Bluesky
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YouTube
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Instagram
COMPLICATED – Open Eye Pictures
COMPLICATED – Open Eye Pictures
Children with complex illnesses and their families are labeled “too complicated” or torn apart by accusations of medical child abuse.
Join genetic research for EDS discovery
Join genetic research for EDS discovery
We've partnered with the renowned Norris Lab at the Medical University of South Carolina to accelerate discoveries in hypermobile Ehlers-Danlos syndrome, Dysautonomia, and other complex conditions.
Find me:
Find me on UpScrolled.com
Find me on UpScrolled.com
Find me on TikTok
Find me on TikTok
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Find me on Instagram
Find me on YouTube
Find me on YouTube
Lost TikTok'er, Comedian, Bendy Baddie, & Co-host of the Hacking Hypermobility Podcast.
Hacking Hypermobility Podcast
Hacking Hypermobility Podcast
We're two bendy mommas with Ehlers Danlos Syndrome, hacking hypermobility.
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Wishlist
Wishlist
Connectivome Theory:
My Videos on Connectivome Theory
My Videos on Connectivome Theory
Publication: The “Connectivome Theory”: A New Model to Understand Autism Spectrum Disorders
Publication: The “Connectivome Theory”: A New Model to Understand Autism Spectrum Disorders
The classical approach to autism spectrum disorders (ASD) is limited to considering their neuro-functional aspects. However, recent scientific literature has...
Association between adult attention-deficit hyperactivity disorder and generalised joint hypermobility: A cross-sectional case control comparison - PubMed
Association between adult attention-deficit hyperactivity disorder and generalised joint hypermobility: A cross-sectional case control comparison - PubMed
Prevalence of ADHD and Autism Spectrum Disorder in Children with Hypermobility Spectrum Disorders or Hypermobile Ehlers-Danlos Syndrome: A Retrospective Study
Prevalence of ADHD and Autism Spectrum Disorder in Children with Hypermobility Spectrum Disorders or Hypermobile Ehlers-Danlos Syndrome: A Retrospective Study
Hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS) are both characterized by generalized hypermobility, in combination with pain, affected proprioception, and pronounced fatigue. Clinical observation indicates that ...
Joint Hypermobility and Autism Spectrum Disorder in Adults
Joint Hypermobility and Autism Spectrum Disorder in Adults
Autism spectrum disorder (ASD) and generalised joint hypermobility (GJH) share a number of clinical manifestations including proprioceptive impairment, motor difficulties, sensory hypersensitivity, and autonomic dysfunction. Clinical observations suggest that GJH is overrepresented in ASD. However, …
Researchers & Scientists:
Autism in Media : Representation, Marginalisation, and Epistemic Impacts (Angewandte Repository - o:75270)
Autism in Media : Representation, Marginalisation, and Epistemic Impacts (Angewandte Repository - o:75270)
UNDERSTANDING HYPERMOBILE EHLERS-DANLOS SYNDROME & HYPERMOBILITY SPECTRUM DISORDER
UNDERSTANDING HYPERMOBILE EHLERS-DANLOS SYNDROME & HYPERMOBILITY SPECTRUM DISORDER
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.
Hypermobility/Ehlers-Danlos Syndrome Educational Handouts from Dr. Russek
Hypermobility/Ehlers-Danlos Syndrome Educational Handouts from Dr. Russek
RCCX Theory
RCCX Theory
RCCX: Co-segregating C4, CYP21, TNXB mutations may explain EDS/hypermobility, CFS/ME/FM, MCAS, POTS/OI/dysautonomia, autism/mood disorders/anxiety/schizophrenia, MS, Lyme, CVID, endocrine and pain syndromes, etc. in patients and their families
For Doctors - Oh TWIST
For Doctors - Oh TWIST
EDS Researcher's Blog Science Over a Cuppa
EDS Researcher's Blog Science Over a Cuppa
OCCASIONAL POSTS ON SCIENCY TOPICS
Ehlers Danlos Syndromes Resources
New Book - Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability Paperback – by Christie Cox (Author)
New Book - Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability Paperback – by Christie Cox (Author)
Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability [Cox, Christie] on Amazon.com. *FREE* shipping on qualifying offers. Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability
US Social Security Administration, National Academy of Sciences Report - Selected Heritable Disorders of Connective Tissue and Disability
US Social Security Administration, National Academy of Sciences Report - Selected Heritable Disorders of Connective Tissue and Disability
The latest from USC on hEDS anatomy.org
The latest from USC on hEDS anatomy.org
Join the EDS research community on Stuff That Works
Join the EDS research community on Stuff That Works
EDS Society Announced HEDS / HSD Study on Diagnostic Criteria
EDS Society Announced HEDS / HSD Study on Diagnostic Criteria
Norris Lab / USC EDS Research Registry
Norris Lab / USC EDS Research Registry
What is Ehlers Danlos Syndromes / EDS?
What is Ehlers Danlos Syndromes / EDS?
Dysautonomia International - Conditions Related to POTS:
Dysautonomia International - Conditions Related to POTS:
FDA warning on Cipro for Hypermobility / EDS / Marfan's
FDA warning on Cipro for Hypermobility / EDS / Marfan's
Book Recommendation: Disjointed
Book Recommendation: Disjointed
PRELIMINARY hEDS GENE REPORT: Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome
PRELIMINARY hEDS GENE REPORT: Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome
Tulane Paper - "Folate-Deficient Hypermobility Syndrome: A Proposed Mechanism and Diagnosis"
Tulane Paper - "Folate-Deficient Hypermobility Syndrome: A Proposed Mechanism and Diagnosis"
I have EDS, now what?
I have EDS, now what?
Joint Hypermobility Assessment
Joint Hypermobility Assessment
Ehlers Danlos Diagnostic Criteria
Ehlers Danlos Diagnostic Criteria
The Ehlers Danlos Society
The Ehlers Danlos Society
Resources from CEDSA
Resources from CEDSA
When It Comes to Your Health Care, You're Already the Expert
When It Comes to Your Health Care, You're Already the Expert
10 Ways Women Can Advocate for Themselves at the Doctor’s Office
10 Ways Women Can Advocate for Themselves at the Doctor’s Office
Comorbidities Common with Ehlers Danlos Syndrome
Comorbidities Common with Ehlers Danlos Syndrome
Ehlers Danlos Syndromes Toolkit
Ehlers Danlos Syndromes Toolkit
Ehlers-Danlos syndrome: MedlinePlus Medical Encyclopedia
Ehlers-Danlos syndrome: MedlinePlus Medical Encyclopedia
Medical Studies
"Joint Hypermobility Syndrome: Recognizing a Commonly Overlooked Cause of Chronic Pain"
"Joint Hypermobility Syndrome: Recognizing a Commonly Overlooked Cause of Chronic Pain"
List of Medical Studies/ NIH
List of Medical Studies/ NIH
Info for Professionals
Ehlers Danlos Toolkit for General Providers / Primary Care
Ehlers Danlos Toolkit for General Providers / Primary Care
Professionals - The Ehlers Danlos Society
Professionals - The Ehlers Danlos Society
Project ECHO
Project ECHO
Website from author C. Smith on JHS/EDS
Website from author C. Smith on JHS/EDS
HMSA Education Model | The HMSA
HMSA Education Model | The HMSA
Other Connective Tissue Disorders
Ritter Rules – John Ritter Foundation for Aortic Health
Ritter Rules – John Ritter Foundation for Aortic Health
What is Hypermobility Spectrum Disorder?
What is Hypermobility Spectrum Disorder?
Stickler Involved People (US Support Group for Stickler Syndrome)
Stickler Involved People (US Support Group for Stickler Syndrome)
The Marfan Foundation
The Marfan Foundation
Connective Tissue Disorders | MedlinePlus
Connective Tissue Disorders | MedlinePlus
What is Marfan's?
What is Marfan's?
Helpful Products
Zebra Comforts
Zebra Comforts
Green Goo Pain Relief Salve with Arnica
Green Goo Pain Relief Salve with Arnica
Wobble Board for Ankle Strength
Wobble Board for Ankle Strength
Heated Cervical Collar for Neck Pain Relief
Heated Cervical Collar for Neck Pain Relief
Ankle Brace - Breathable, Adjustable, Works on Kids!
Ankle Brace - Breathable, Adjustable, Works on Kids!
Cervical Traction Device - Migraines, TMJ Pain
Cervical Traction Device - Migraines, TMJ Pain
Hip Brace (Soft, Adjustable, Affordable)
Hip Brace (Soft, Adjustable, Affordable)
Knee Support Sleeping Pillow
Knee Support Sleeping Pillow
MTHFR Gene Variants
MTHFR gene variant | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program
MTHFR gene variant | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program
MTHFR Gene and Folic Acid
MTHFR Gene and Folic Acid
Mental Health Resources
Trauma Informed Care / ACES - Patient Resources
Trauma Informed Care / ACES - Patient Resources
Mental Health Resources from the Ehlers-Danlos Society
Mental Health Resources from the Ehlers-Danlos Society
Lifeline / Suicide Prevention Help
Lifeline / Suicide Prevention Help