Wayne’s world: a friend and carer’s perspective

Providing support for a blind friend is about more than making sure he avoids obstacles, says Daniel Levene, as he prepares for the onset of his own blindness. When Wayne describes the day it’s like he is describing a Rothko painting. “It’s red with a thick band of yellow across the top and a thinner …

The Download: PAs, inspiration and disability arts

Guests Lisa Egan, David Hevey and Michael McGrath join presenter Paul Carter to discuss problems with paying PAs redundancy, the recently launched National Disability Arts Collection and Archive celebrating the battle for disability rights and why some people positively want to inspire others. Producer Ian Macrae http://traffic.libsyn.com/disabilitynowthedownload/The_Download_July_2016.mp3 Download the audio The Download July 2016 transcript

Care and the cost of the National Living Wage

Dr Lin Berwick has high support needs, which up till now have been met by the use of 24/7 home care. But following the introduction of the National Living Wage in April this year she’s been alarmed to discover that her care package is unravelling. Let me make it absolutely clear, I have always tried …

Caring, parenting and points of pressure

June 6-12 is the annual celebration of Carers Week, highlighting a “campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities throughout the UK.” But what asks Jane Renton if you have to fight even to get recognition as a carer in the first …

Disabled people’s lost collective voice

Lessons from the past and present lead Peter White to the conclusion that disabled people need a louder voice to secure the future. Three recent experiences in my job have brought home to me afresh that disabled people need a louder voice. BBC Radio Four’s series The Reunion brings together major players in news stories …

Institutional care creates institutionalised abuse

While Andy Rickell praises the principled stance of one politician, he still fears the law of unintended consequences when it comes to residential care. Rarely will you hear me praise any politician because rarely do they stick their neck out for a policy that would truly improve disability equality. So step forward Norman Lamb MP, …

Raised profile of mental health points up flaws in system in crisis

Ruth Patrick has identified some encouraging signs with more positive attitudes and perception of mental health, but under-funding and ongoing cuts to services shed a less positive light. For years, describing mental health as the ‘Cinderella’ of NHS provision was commonplace, an easy shorthand for the chronic under-funding and poor levels of mental health care. …

Disabled actors, PAs and passenger assistance

Presenters Paul Carter and Helen Dolphin are joined by Dr Tom Shakespeare, Zara Todd and Mik Scarlet. On the agenda, non-disabled actors ‘cripping up’, disabled people employing PAs and passenger assistance when travelling by rail. http://traffic.libsyn.com/disabilitynowthedownload/The_Download_26.mp3    

New Care Act guidance exposes Government deception

The care minister Norman Lamb has hailed the 2014 Care Act as the biggest change in social care in 60 years because it gives people full control of their care packages. But Peter Beresford says that this stance is a sham… Guidance does not have the same force of law as primary legislation but it …

Personal Budgets: not what they seem

They were brought in amid promises of cheaper, more efficient provision and greater choice and control. But Professor Peter Beresford says the evidence shows that personal budgets are simply not delivering. A situation report on the current state of social care can only be concerning. Findings from LSE research commissioned by the Care and Support …