Thursday, February 9, 2017

Heart Day

I know, I know...it's been a LONG time!  Maybe this will prompt me to go back and fill in the blanks of the past 3 years on my severely neglected blog...goodness knows a LOT has happened (like another child being born!)....  But for now, we'll talk Heart Day!

Heart Day in the Brewer house has a new spin!  Some of it pretty similar, but most of it completely different.  Brewer Heart Day is celebrated on February 9th. Why, You might ask?  February 9, 2015 was the date of Jeff's Open Heart Surgery.  That day and the month and a half prior changed our lives significantly.  This story is one that many know, but that I've never put into written words.  But, today on the 2 year anniversary, that changes...so let's go back to the beginning.

December 19, 2014:  This day started bad and just got worse!  Landyn and I were sick.  I took Landyn to the pediatrician and she tested positive for the flu...yuk.  Got tamiflu for all the kids and headed home.  I quickly decided that I should be tested as well.  Since I don't have a regular doctor I headed up to the CVS minute clinic where I quickly tested positive.  This was the day Christmas vacation started and the day before we were supposed to head to my parents for Christmas....so this was not looking good!  I text Jeff the news and he called saying that he didn't feel well either. We decided he should just stop at CVS on his way home.  About an hour later I get a call....from Jeff.  He's at the minute clinic and says "Hey, she says she hears a heart murmur and that I should go to the ER"  my wife of the year response was "you're there for tamiflu....get your medicine and get your butt home to help me take care of these kids".  I know....such a nice caring response...I blame it on the flu!
Jeff gets home and we start talking about the doctors concern  and  decide to go to a free standing ER just to put our minds at ease for the holidays.
Grandma came over and off we went.  There are so many instances in this journey where, in retrospect, I see God's hands so clearly.....the ER we found to go into is one of them.  We ended up at the Methodist Hospital ER in Pearland, but that wasn't our intention...after getting turned around, frustrated and many other things we just pulled in the parking lot and went in!  As we checked in and told them why we were here they seriously laughed at us!  I can't tell you how many times that night we heard the phrase "lots of people have heart murmurs".  The doctor openly ridiculed the minute clinic doctor as he began to examine Jeff.  He got his stethoscope, listened to his heart and his face fell.  It was that moment I knew something was wrong.  After listening a while, calling in another doctor and all the nurses for a listen he explained that we needed to be sent my ambulance to the Methodist Hospital in the med center.  He thought Jeff had Aortic Stenosis which to be honest, I don't even remember what that is although I know I googled it in the ER and wasn't excited about what I found.
Jeff was beyond pissed at this point that he had to ride in an ambulance!  This was the first of many times throughout the next 2 months that I saw my nice calm husband...you know the man with the patience of Job.....become enraged and obstinate.  Fear is real, fear is irrational, and when your world is turned upside down faster than you can handle, it changes you.
We will fast forward through the overnight hospital stay where after EKG's, Electrocardiograms  a  slew of other tests and tons of doctors coming in to listen to his murmur (evidently it was the worst they'd ever heard and a teachable moment)  it was determined that Jeff had a Mitral Valve Prolapse with regurgitation.  We were given an appointment with a valve specialist in the DeBakey Heart Institute at Methodist Hospital.  (This is where God's intervention really shown through.  We were sent to Methodist hospital, home of one of the best heart programs in the world.  Coincidence?  I think not.)  On January 15th we met with Dr. Barker who confirmed the diagnosis and added to it that Jeffs heart was very enlarged.  His Mitral Valve did not work properly, and because it didn't close back after the blood flowed through it was allowing blood to come back into a part of his heart it wasn't supposed to come back into.  This is a birth defect...he was born with it and more often than not it can be treated with medication.  Because Jeff's had gone undetected for so long it was causing a big problem, and had to be fixed.  Quickly.  On the 19th we met with the surgeon and they did another procedure to try to get a better look at Jeff's heart (this procedure is a story in and of itself!), the surgeon rates the necessity of surgery on a 5.0 scale with 5.0 being you need to be on the table right now.  Jeff was at a 4.9.  His Mitral Valve had to be repaired.  His heart was working overtime and was enlarged and had it not been for the flue and for the CVS minute clinic doctor suggesting he go to the ER, Jeff would have died.  Jeff was in the middle of training for a half marathon, I have no doubt that - if not for Jill Bull (I'll never forget her name) - my husband would have left for a run and never returned.
But, God had a plan, and he did return, and on February 9, 2015 at the age of 39 he had open heart surgery (jeff was the youngest patient on the cardiac floor by at least 25 years).  The emotions that filled the time between when we were told surgery was going to happen and the surgery are truly indescribable.  Jeff was convinced he was not going to make it through the surgery, it was a hard, scary time.We had to have conversations and think thoughts that no one ever wants to.  But, on February 9, 2015 at about 12:35 pm, he woke up....he lived.  Day 1 of the rest of his life began!  The recovery was hard, his journey is unbelievable, but God was in control every step of the way.  From orchestrating a job change the August before to make sure Jeff wasn't in the middle of soccer season during this time, to Jill Bull being the doctor on duty that day who was brave enough to insist he go to the ER, to Methodist hospital being where he ended up, to the countless number of friends and family members who prayed, brought meals, kept our kids, and prayed some more.....God was in control.  All of the details fell into place, and became a piece of his testimony.  A testimony of strength, perseverance, and faith.  I watched my husband in agony, a pain I can't even begin to comprehend, but I also watched him battle with a fierce determination.  A determination to make every day count and to live like there is no tomorrow.

This picture was taken on March 19, 2016...a little over a year after open heart surgery....Jeff completed that 1/2 marathon!

If you've known Jeff and I very long you know we've been through a lot together.  And I don't want to paint an inaccurate picture here....we were angry, we were fearful, and there were times we didn't feel like we had the strength to be faithful.   My husband is the strongest man I know.  He was scared, he was vulnerable, he was feisty and he may have scared a few doctors, but he persevered, and his faith grew stronger every day.  He is the perfect leader for our little family.  He leads prayerfully, peacefully, and patiently.  We are so thankful for him and are so thankful for God's faithfulness.  Today, on Brewer Heart Day, we are thankful for Jeff and for the example he sets for us all.  We are thankful for the journey....we are thankful  this part of the journey is behind us....but we are thankful for a God that guides us and is in control even when we can't see the why.  We are thankful for a God that orchestrates the details in our lives and that  "all things work together for the good of those that love God".  And we are living proof that in the eye of the storm, God really does remain in control.

Happy Heart Day!  


Tuesday, January 8, 2013

family pictures

The saturday after Thanksgiving we met up with the Dallas Brewers at Mercer Arboretum to have some familiy photos taken.  I waited to post them because they were Christmas surprises, but now I can share!!  Michele Johnson did a fabulous job!  I loved what she was able to capture!

just a warning…there’s a lot of pictures!  I couldn’t choose just a few!

These boys are so grown up!

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The whole crew

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eeeewwwwww

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big brother

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I don’t remember what we were so excited about, but evidently the twins weren’t impressed!

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oh Kaden! to say this boy was difficult during this photo shoot is an understatement!  so these are actually 2 of my favorites bc they’re SO kaden right now!  doing the opposite of everyone else!  Love my mischievous boy! 

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he might be mischievous, but he’s sweet too!

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my little miracles are getting so big

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and we’re back to mischievous!

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mommy and her princess!

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it’s been a rough few years…but we’re still smiling!

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the bag of goldfish!  Only way we could get Kaden into most pictures!

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I love candids!

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the 5 grandkids

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my little sunshines!

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a little randomness

had some random pictures that really didn’t fit anywhere else, but I wanted to document nonetheless!

story time!  Brady is such a good big brother!

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daddy was changing a light bulb and I guess Kaden thought he needed help!

It’s soccer season!  Daddy had his first scrimmage on saturday.  So we put on our soccer attire and headed to Brook!

Karsyn Loves the coach!

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Brady was annoyed that we stopped for group pictures!

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Unfortunately the weather didn’t cooperate.  After unloading and sitting under the covered area for 30 minutes I decided to take that babies home.  cold and wet weren’t a great combo for our crew that had been sick!

 

and just because she’s cute!  Karsyn was quite proud of herself sitting up at the art table!  She said “mommy cheese” hmmm maybe I take too many pictures!!

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festival of lights

The last few years we’ve had great intentions of going to the festival of lights at moody gardens.  We went when Brady was little, but haven’t been back since.  Until now!!  Added bonus, we met up with our cousins!  It was a little cold, but fun nonetheless!

the fab 4…or the big kids as we call them!

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catherine and karsyn enjoying the ride

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kaden’s there…underneath that jacket somewhere!

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unfortunately for daddy, kaden didn’t do much walking!

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The Brewers

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The coles

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roasting marshmellows for smores

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yummy….

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marshmellowy…..

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GOODNESS!

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Brady quite literally running circles around hannah!

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Sweet jacob matthew!  This boy is growing up so fast!

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cheese

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and they’re done!

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after running all those circles he couldn’t walk any more!!

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what a fun time!  thanks to Grandma for taking all the pictures for me!

space center houston

The Friday after Christmas we loaded up and met Grandma at Space Center.  They had an angry birds space exhibit and Brady was beyond excited!  Brady has been to space center several times with grandma, but this was the twins first trip.  Brady was very nice and showed them all his favorite things!

Miss Karsyn had a blast in the ball pit!

my angry birds

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the boys lifting weights

pretending to ride in a space ship…Karsyn was unimpressed!

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look what I found

mommy and the boys went on a space flight simulator!

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racing on the bikes

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daddy…a bit of a sore loser!

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